{Wisdom Wednesdays} Have You Ever Tried Theratogs?

One thing that I’ve been wanting to do on this blog for like a zillion years is to start a collection of posts that are as much about the comments as they are about the post. I belong to a bunch of private message boards and there is a ton of great information on them, but private message boards can’t be found by Google and you have to join to see them. It’s a shame to let all that good information go to waste!

From here out out I hope that each Wednesday we’ll a have a post like this one–a post that lists an issue that I’ve spotted on a message board that other parents can comment and respond to. I’ll get the ball rolling with our own experiences:

These weren't put on very well, but they still helped.

These weren’t put on very well, but they still helped.

 

Have you ever tried Theratogs?

Yes! We have. We have found theratogs very helpful in getting Charlie to hold his body up straighter and we also noticed that he seems to hold these improved positions long after we’ve taken the theratogs off. The big issue for us and theratogs were the time involved in putting them on and the heat. Charlie overheats very easily, so we can only use Theratogs at certain times of the year–here in South Louisiana, that’s not very often.

Time was also a factor for us. Once Charlie got strong enough to start crawling, it can be difficult to get the whole getup without him crawling away halfway through.

Despite these limitations, I would definitely recommend theratogs for kids who are working on postures or who need a little support to become better sitters or standers–they seem to remind the child the best way to do these activities. When I think about things like splints and braces, this is/was the best product that we tried with Charlie.

Open Question: Have You Tried a Brace/Splint That Worked Really Well for Your Child? What Was It? Why Was it Great?

I’d now like to open up the floor for more wisdom. Have you tried a particular brace that worked great for your child? A splint? We tried some wrist splints for Charlie and he could take all of them off. We did night knee braces, but I don’t feel like they did a whole lot and they definitely made sleeping harder. I’m considering trying a Benik splint to help him get his index finger out for using the iPad, but I’m worried he’ll just take that off too.

IEP Drama Comes to an End

In case you are too busy to read to the very end of this story, I’ll give you the moral up front: talk, talk, talk to the people who are in charge of your kid.

The End.

Just kidding–you didn’t think I was going to let you off that easy, didja?

So here’s what happened:

Two days before Charlie’s IEP, I stopped by his class–I can’t even remember why–and his teacher sat me down and just asked me what I wanted the most for Charlie. I told her all about how I wanted him to be in classes with typical students more often. I told her that that was probably teh most important thing of all. She listened to me and we talked some more the next day.

We showed up for the IEP and the principal was there, a representative from special education, and the usual cast and crew (teacher, therapists, etc.).  I’m always really impressed by how many people come to the IEPs. I actually taught special ed for a few years and I NEVER saw that kind of attendance at an IEP. Usually it was just me and maybe one or two other people. This is not the point of this story, though! The point: Charlie’s IEP–after a lot of discussion about goals, the principal presented us with the following, very special, she-obviously-got-really-creative solution for my Charlie.

Here’s what we’re doing: We’re holding Charlie back and he’s going to do another year in Early Intervention Preschool. For reasons I don’t completely understand, this is NEVER done, but they’re are opting to do it because of my intense desire to see Charlie spend time with his typical peers. The past three years he’s been in a self-contained class most of the day with about fifteen minutes in a regular class. Next year he will be enrolled full-time in a “combo class.” This is a class where half the students are typical and the other half are special education students. How cool is that? He’s also going to do morning routine in a class called “transitional first,” which is a class for kids who are old enough for first grade, but who are mature enough. In the afternoons, we will still give Charlie the option of going back to the self-contained class for rest or a nap since he does still get very worn out by the school day routine.

Basically, I’m getting everything I wanted. We will still have to find a place for him for actual first grade, but I think that doing next year this way will open up a lot more opportunities for him.

All this because I said exactly what I wanted. And his teacher moved the earth to get it for us. We are so blessed.

kitchen dancing

 

This I Can Do

graphic reading "Little Joy Map"

In my last Little Joy post I mentioned that I am not very good at physical affection. I’m terrible at it actually, but I don’t need to get real specific, right? I have discovered some semi-touchy-feely things that I’m very good at, and I thought I’d share those. Consider this affection for the touchy-feely impaired:

IMG_3482

At the grocery after they screamed like maniacs through a trip to the hairdresser. In fact, we left before she could cut August’s hair. Hello, terrible twos!

  1. Bear Hugs–for some reason, these are better than the lame, barely-there hugs that are the norm. These can also include antics such as swinging, tickling, and other silliness that boys love (girls may love it too–I’m not sure).
  2. Pretend Danger–all of my kids like to be tossed onto the bed or the couch. I haven’t tested this with the baby, but the other three are all about it. Charlie also likes it when I go to put him on the floor and then STOP suddenly. And then do that like eight more times. It is guaranteed giggles every time.
  3. Mani/pedis. I know! This one is ridiculous, but here’s the thing–I am an Acts of Service kind of person. I do things for you and that’s how I show you that I love you. I have discovered, however, that there are things that are service that are also tactile. It’s funny because I have a very clean memory of helping my mother wash and style her hair when she got home from having a surgery to have cancer removed. That was my love in action. With my kids, I’m doing the same thing. I sat down with August and carefully trimmed his nails and cleaned out the dirt from under each fingernail. He say in my lap the whole time and really enjoyed it. With Charlie, his feet and ankles can get incredible tight from his cerebral palsy. I can take a little lotion and help loosen them up in the afternoons. Again, physical for them, but also an Act of Service, so something I’m very comfortable with.

I may not be an expert at this stuff, but I am getting better, I think.

No worries. I don't push the cart with Louie standing up.

No worries. I don’t push the cart with Louie standing up.

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