Comments for Bird on the Street http://birdonthestreet.com Typical Need Not Apply Sun, 05 Feb 2012 07:58:40 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on This Isn’t Seattle by Andrea S. http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32476 Andrea S. Sun, 05 Feb 2012 07:58:40 +0000 http://birdonthestreet.com/?p=4310#comment-32476 Thanks for the link, Gabriella! The bed tent looks promising. I'm going to take a closer look now... Thanks for the link, Gabriella! The bed tent looks promising. I’m going to take a closer look now…

]]> Comment on This Isn’t Seattle by Barbara http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32475 Barbara Sun, 05 Feb 2012 02:33:49 +0000 http://birdonthestreet.com/?p=4310#comment-32475 Too bad the experts cannot see apnea on a video of someone at home. What about the simple apnea monitors they send home with premies? Not to get personal, and you do not have to reveal here, but does he snore? I thought that was an indicator... Lots of good comments from those who know - I'd be interested to your answer about the weighted blanket. Could a pair of snug long-johns work, too? (I am not recommending Theratogs for sleep. Not.) Finally, this doc is really well-liked by parents and therapists here, even though he moved to Houston: http://pedzzz.blogspot.com/ Too bad the experts cannot see apnea on a video of someone at home. What about the simple apnea monitors they send home with premies?

Not to get personal, and you do not have to reveal here, but does he snore? I thought that was an indicator…

Lots of good comments from those who know – I’d be interested to your answer about the weighted blanket. Could a pair of snug long-johns work, too? (I am not recommending Theratogs for sleep. Not.)

Finally, this doc is really well-liked by parents and therapists here, even though he moved to Houston:
http://pedzzz.blogspot.com/

]]> Comment on This Isn’t Seattle by Gabriella http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32471 Gabriella Sat, 04 Feb 2012 20:38:03 +0000 http://birdonthestreet.com/?p=4310#comment-32471 I always find it interesting that sleep tests are done with more disruption to sleep than a normal night's sleep would be. Good luck to you! I always find it interesting that sleep tests are done with more disruption to sleep than a normal night’s sleep would be. Good luck to you!

]]> Comment on This Isn’t Seattle by Gabriella http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32470 Gabriella Sat, 04 Feb 2012 20:36:40 +0000 http://birdonthestreet.com/?p=4310#comment-32470 I tend to agree with this idea. My little guy sleeps better in winter, with heavier blankets, than he does in summer. I tend to agree with this idea. My little guy sleeps better in winter, with heavier blankets, than he does in summer.

]]> Comment on This Isn’t Seattle by Gabriella http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32469 Gabriella Sat, 04 Feb 2012 20:33:01 +0000 http://birdonthestreet.com/?p=4310#comment-32469 Andrea: My son is 4 and still in a crib. We just ordered and received this bed tent: http://www.myreadysetbloom.com/ Have you seen it? We haven't assembled it yet because we are still searching for a bed frame and mattress, but it seems like a good option for some children and it's been designed/created by a mom of a child with special needs. Andrea: My son is 4 and still in a crib. We just ordered and received this bed tent: http://www.myreadysetbloom.com/
Have you seen it? We haven’t assembled it yet because we are still searching for a bed frame and mattress, but it seems like a good option for some children and it’s been designed/created by a mom of a child with special needs.

]]> Comment on This Isn’t Seattle by Paulette http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32468 Paulette Sat, 04 Feb 2012 20:20:34 +0000 http://birdonthestreet.com/?p=4310#comment-32468 Our ENT is suggesting a sleep study, too. And a tonsillectomy. I don't know if we'll do it now or wait. I've wondered about the nighttime seizures as well. Our ENT is suggesting a sleep study, too. And a tonsillectomy. I don’t know if we’ll do it now or wait. I’ve wondered about the nighttime seizures as well.

]]> Comment on This Isn’t Seattle by Elaine http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32467 Elaine Sat, 04 Feb 2012 19:40:29 +0000 http://birdonthestreet.com/?p=4310#comment-32467 Good luck. I hope it goes alright... Good luck. I hope it goes alright…

]]> Comment on This Isn’t Seattle by Jenny http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32466 Jenny Sat, 04 Feb 2012 19:23:08 +0000 http://birdonthestreet.com/?p=4310#comment-32466 My daughter also had obstructive apnea at night (low tone due to brain injury), interfering with sleep and oxygen levels (she was on oxygen all night as a result. Anyway - we did tonsils and adenoid removal, and it helped apnea and oxygen, but not sleeping! She's still a horrible sleeper. We have several meds we use to help, and will have more options as she gets bigger. In her case, I think the brain injury just doesn't allow her to calm herself back to sleep - she will stay awake all night long! Anyway - have fun with the sleep study - no one gets sleep at those things. My daughter also had obstructive apnea at night (low tone due to brain injury), interfering with sleep and oxygen levels (she was on oxygen all night as a result. Anyway – we did tonsils and adenoid removal, and it helped apnea and oxygen, but not sleeping! She’s still a horrible sleeper. We have several meds we use to help, and will have more options as she gets bigger. In her case, I think the brain injury just doesn’t allow her to calm herself back to sleep – she will stay awake all night long! Anyway – have fun with the sleep study – no one gets sleep at those things.

]]> Comment on This Isn’t Seattle by sarah http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32465 sarah Sat, 04 Feb 2012 19:21:03 +0000 http://birdonthestreet.com/?p=4310#comment-32465 Oh man. Good luck. I pray that the sleep study goes good and you all can figure out what is going on. I am sure it is frustrating for you. Oh man. Good luck. I pray that the sleep study goes good and you all can figure out what is going on. I am sure it is frustrating for you.

]]> Comment on This Isn’t Seattle by Amy http://birdonthestreet.com/2012/02/this-isnt-seattle/#comment-32464 Amy Sat, 04 Feb 2012 18:47:30 +0000 http://birdonthestreet.com/?p=4310#comment-32464 Oh man! My kid is about the same. Though he goes to sleep just fine. He'll sleep a good few hours and then he's up. He'll be up the rest of the night then, most nights. We've had ONE sleep study. It went horrible and I vowed to never, ever go through another one again. The sensor that goes in the nose (just at the tip) got wet because my son has a lot of spit that he does not control much at night. Plus they were blowing air in his nose which caused his nose to be runny. Well once that sensor got wet it stopped sensing what it needed to be sensing and so the nurse person kept coming in to fix it but it never stayed fixed for very long. Before long my kid was awake for good. PLUS, I was instructed to not sleep in his bed with him or take him out of his bed and that if he woke up I was to try and let him comfort himself and fall back to sleep on his own. None of these things is how he was used to sleeping or going to sleep. I always rock him to sleep on my lap. If he wakes up in the night he won't go back to sleep on his own. There's no good chair in the sleep room plus I really wasn't allowed to take him out of bed nor was I allowed to get in bed with him. I got so mad at them at one point that I did just as they said. Let him try to comfort himself back to sleep. It didn't work of course and they didn't get any information from their study. That was a few years ago. I'm a stronger, more confident person now. We are still having some issues with sleeping AND my kid has a cpap now too. However, we've met a wonderful sleep specialist who has suggested another sleep study. gah! I'm gonna do it. BUT, I'm gonna get in bed with my kid if that's what needs to be done in order to get him back to sleep. And that's that. Good luck with your sleep study. I hope it goes better than our first one did. Surprisingly the wires attached to the body did not bother my kid as much as the nose sensor did. In fact, if that stupid sensor hadn't gotten wet he probably would have done just fine. Ironically, our upcoming sleep study is on Valentines day night. What a date! haha Oh man! My kid is about the same. Though he goes to sleep just fine. He’ll sleep a good few hours and then he’s up. He’ll be up the rest of the night then, most nights. We’ve had ONE sleep study. It went horrible and I vowed to never, ever go through another one again. The sensor that goes in the nose (just at the tip) got wet because my son has a lot of spit that he does not control much at night. Plus they were blowing air in his nose which caused his nose to be runny. Well once that sensor got wet it stopped sensing what it needed to be sensing and so the nurse person kept coming in to fix it but it never stayed fixed for very long. Before long my kid was awake for good. PLUS, I was instructed to not sleep in his bed with him or take him out of his bed and that if he woke up I was to try and let him comfort himself and fall back to sleep on his own. None of these things is how he was used to sleeping or going to sleep. I always rock him to sleep on my lap. If he wakes up in the night he won’t go back to sleep on his own. There’s no good chair in the sleep room plus I really wasn’t allowed to take him out of bed nor was I allowed to get in bed with him. I got so mad at them at one point that I did just as they said. Let him try to comfort himself back to sleep. It didn’t work of course and they didn’t get any information from their study.

That was a few years ago. I’m a stronger, more confident person now. We are still having some issues with sleeping AND my kid has a cpap now too. However, we’ve met a wonderful sleep specialist who has suggested another sleep study. gah! I’m gonna do it. BUT, I’m gonna get in bed with my kid if that’s what needs to be done in order to get him back to sleep. And that’s that.

Good luck with your sleep study. I hope it goes better than our first one did. Surprisingly the wires attached to the body did not bother my kid as much as the nose sensor did. In fact, if that stupid sensor hadn’t gotten wet he probably would have done just fine.

Ironically, our upcoming sleep study is on Valentines day night. What a date! haha

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