An Unusual Discovery

A few days ago I got it into my head that it’s time to start teaching Charlie about letters. Unlike almost every early childhood program out there, I had opted to start Charlie on whole words and then go back and teach individual letters after we’d built some sight words. I had my reasons and they were based on scientific research and all that, but I won’t bore you with all the details.

So, out of nowhere I decide it’s time to start talking about letters. I sit Charlie down in front of his iPad, and bring up the Notes app (not the best choice, but fine for the moment).  I start a new note which brings up the key board and then go into my nifty teacher mode.

“So, Charlie, today we’re going to talk about letters. Can you see all the letters here? Tell me–do you know which letter is the first letter in Charlie?”

I take his hand and hold it in the pointer position–he’s come a long way in this area, but he’d still rather have someone else do his pointing. I wasn’t really expecting him to answer. I was doing that obnoxious thing that teachers do where they ask you something that they know you don’t know, and then they just go and give you the answer.

Imagine my surprise when his little arm immediately pecked on the letter C. He did it so quickly that I had a feeling we were going over old territory for the little guy. I went ahead and asked him the next letter feeling pretty confident that he wouldn’t be able to do this one–whenever we study his name, we use a lower-case h and the keyboard features an upper-case one.

Yeah, he got that one in about five seconds as well. This is the same moment that he got very, very bored with the activity and began trying to close the application. I pushed on. He had some trouble with the letter i, but other than that, was able to spell his entire name. Later, my MIL, who teaches Kindergarten, explained that i on the keyboard looks completely different than the i that we teach children–no serifs or dots on the keyboard. She said it’s a pretty common problem for small children. Charlie and common are two words rarely used together.

Over the next few days I have discovered that he can spell Charlie, Mommy, Daddy, Max (our cat), red, and Rude Boy. That last one is a horror show of a Rhianna video that I wish I had never downloaded because he loves it and it is SO not for children.  He cannot spell Buster, who is the family dog. Basically, he can spell most of the words that we’ve studied in reading. He also seems to know his letters already–he taps those out quickly if you say one out loud. Don’t know if it’s every one, but it’s plenty.

I’m pretty thrilled. I’ve done a lot different things to try to teach Charlie and it’s unbelievably good to know that at least a small part is sinking in. My husband was completely skeptical–he didn’t even want to watch Charlie work–but I made him sit down and see for himself. Afterwards, he said to me, “Mind. Blown.”

Not exactly sure where to go next with this, but I’m happy none the less. I decided a while ago that Charlie’s best bet for communication would be something  computer-based. Will it be typing? I have no idea, but I do know that spelling and reading are the building blocks of communication for him–the keys to expressing what he’s thinking and feeling. Seeing it in front of my eyes is downright amazing.

boy in stroller listening to iPad with headphones

Just listening to music, but maybe one day he'll be able to tell me things.

Friends

I’m supremely bad at mornings, so when the bus driver arrived fifteen minutes early the other day I was in no way prepared for her. I waved her on, called my MIL who was on vacation and asked her to watch the twins, and pushed Charlie down to school myself.

It was a cold morning, so I had Charlie dressed in his fleece and a hat that looks like a Tiger.

As we wheeled into the building, a mom looked right at me and said, “that’s a great hat.”

In the hallway, teachers exclaimed and complimented Charlie on his fantastic hat. A little girl walked up to Charlie and said, “he looks like a real tiger.” Then she put her hand on Charlie’s shoulder and walked like that the rest of the way to his class.

To say that my heart melted would be an understatement.

Boy sitting and looking at the camera

Speaking of melting, I love this picture and could look at it all day.

Some Victories

At the beginning fo this week I began drafting a new post about how it was another year and once again we were fighting to get an air conditioned bus for Charlie to ride on. For those of you that don’t remember, Charlie’s brain damage has left him unable to properly regulate his body temperature. When in the heat, he turns very pink and then becomes limp and lethargic. Our neurologist has informed us that if we aren’t careful, this could even lead to a seizure (like when a child seizes from a high fever).

Last year I let Charlie ride the bus in the morning, but the afternoon was a no-go, so I picked him up from school. By the end of the year, I was so completely exhausted from Parvo and pregnancy I paid someone to bring him home every afternoon, which the school didn’t really like.

This year I’ve got two infants (and a hernia), so I knew that I needed to have the afternoon bus as an option. I had it written into the IEP in May, had the neurologist write a note, faxed it to the nurse before school started, etc. On the first day of school, it was the same bus as last year–the one with no air conditioning.

I pretty much resigned myself to another year of picking Charlie up, but his teacher was very nice and faxed the request to transportation for an air conditioned bus.

The next day, a new bus driver called–she has the route now and has an air conditioned bus.

And me? I feel like a horrible person. I’m the reason that the old bus driver lost her route. And what happened to her? I don’t even know. I like the old bus driver. She was really nice on the days when I was late getting out the door, and she made gift bags for the kids. She really cared about them. It doesn’t come up much here on the blog, but I am a HUGE fan of community and this feels distinctly un-neighborly. Ugh!

So now we have our air conditioned bus. Charlie can ride to and from school and I don’t have to worry at all about overheating or seizures. We got exactly what we needed without having to beg or fight or anything. This is just what we wanted.

Some victories are bittersweet, though.

one twin screaming and the other looking at him

No good picture of Charlie, so here's one of the twins that cracks me up.

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