Hard to Know

Two days ago I was killing a little time before picking up a friend at the airport. I have a new-found love of old clip earrings so I thought I would stop in at a thrift store near in the area and see if they had anything good.

Charlie was riding nicely in a cast-off grocery cart, but was getting a little tired as we headed to the check out. As I stood at the check out line, a woman walked up and started engaging Charlie. She smiled and talked to him and started touching his hands. I’m wasn’t exactly loving the situation, but I was standing in a line, so what could I really do?

After what felt like an eternity, she asked, “is he handicapped?” Well, I put on my brightest smile and said yes, gave her a few sentences of explanation and then just let it go. She kept playing with Charlie and I kept waiting for her to go away. She got Charlie’s attention, though, and he started grabbing her hand, which is his version of hello. I warned her he might try to put her hand in his mouth and she quickly withdrew it and said, “I don’t want his slobber on me.” That pretty much felt like being slapped in the store. I was so upset that I immediately took out my phone and tweeted my frustration.

She walked off after that and  I continued to stand there glancing secretively at the woman who had so quickly ruined my day.  As she walked off I spotted some tell-tale signs of disability–a shuffle in her walk, an arm held close to the body and bent at the wrist. I’m no doctor, but I would have bet cerebral palsy.

I felt pretty bad about being so irritated. Actually, I  felt like a jerk.

And while I definitely need some sensitivity training, I also thought about how you would go about teaching your disabled child about the fine art of being mannerly. I could tell him not to touch people, but at this point that’s one of his primary ways of communicating with others. I’m sure there are times when I let him get away with things he shouldn’t–just because I’m proud he can do them. Who needs to be reined in–him or me?

I know that physical disability and social awkwardness don’t necessarily go hand in hand. There are plenty of socially-adept people out there with physical limitations–just ask Oprah.

I ‘m not even sure where I’m going with this. Just hoping out loud that when the time is right I’ll figure out the sweet spot–pushing him to be his best, but accepting him as he is; keeping expectations high, but acknowledging his limitations. Really, it’s the same goal that every parent has, right?

close up of boy looking at the camera

Over Protected

I love Law and Order. When I was in college my roommate like to watch Wheel of Fortune every day at 6:00 p.m., so I went out and bought a TV to put in my room so I didn’t miss re-runs of L&O. Yes, I was that sad–I didn’t want to miss a single re-run.

So now that I don’t even have TV, I get my fix with DVDs from the library or streaming on Netflix. You would think I’ve seen every episode by now, but apparently the re-run people only show certain ones and every season has a few I’ve never seen before.

There’s this one episode–I’ve seen it before–but the was BC (Before Charlie) and I never really considered the issues involved the first time I watched it.

The gist of the story is that a woman with Down Syndrome gets pregnant, but since she knows nothing about reproduction, she can’t tell the police how she got pregnant. They, of course, catch the bad guy, and even tie the story up with a nice little bow, but there was some moralizing in there about the mom being over-protective and not giving her child a chance at a more normal life.

And that’s just another thing to add to the recipe that is parenting a special needs child:  Over protection. It’s not just a Britney Spears song.

boy looks at camera

It sounds simple in theory, but reality always seems to be a wee bit different than the theories. For example, I worked with kids with learning disabilities in regular classroom settings. I know that many of them made good gains and probably learned more than if they’d been in a resource setting. I know all that and I still have no idea how I feel about putting Charlie in a regular classroom–even with an aide. There’s a boy at Charlie’s school who is two years ahead of him and who has a very similar condition. He can speak and his wheelchair is green, but other than that, they are very similar. His mom fought HARD to have him placed in a regular Kindergarten class for most of the day. Would I have been that brave? I’m not sure. The idea of letting Charlie sit in a regular class with a regular kids–away from the warm cocoon of his special needs classroom? Yeah, that makes me feel squirmy inside.

It’s easy to spot it when other parent’s are doing it, but when it’s you? Not so much. That floating outside your body this is tough when you’re not in the movies.

I’m not keeping myself up at night or anything, but like I said, it’s just one more thing to think about: am I holding my child back? Is my need to keep him safe keeping him from doing everything he wants?

Ahhhh. . . because just being a parent isn’t hard enough.

boy looks away and smiles

Twinkie Names

Names. Baby names.

I love names–love the process, love the meanings, the excitement. I think naming babies is one of the coolest things ever. Naming twins, however, seems harder. Mostly, Hubby and I have no idea what to name girls. We could name a pack of boys, but girls? Not so much. We lucked out with Charlie, but something tells me we’re going to have at least one girl this time around.

If we have one boy, his name will be Louis. That was our alternate name for Charlie and we still really like it.

If we have a two boys, the third will get something “Kingly” as that’s the route we went with the other two.  Henry is a front-runner, but there are a couple of other ideas as well. Like I said, I don’t think naming two boys will be much of an issues, so I’m not focusing on it too much.

And then there are the girl names. This is where we start to have problems. After MUCH debate, we have landed on four possibilities and I think there’s a good chance that we’ll get to use two of them. My dad disagrees, but he’s got zero babies in his uterus, so I’m planning ahead anyway.

The names we like are:

Elodie–one of Hubby’s great aunts

Stella–another great aunt

Edia–Hubby’s grandmother–it’s pronounced Ay-Dee-Uh.

Lucie–no family connection, but Hubby was over the moon for this name, so it stays.

You may notice that we seem to pick a lot off of Hubby’s tree–that’s because my tree is full of Myrtles and Winifreds.

So that’s where we are. Please feel free to weigh in on your idea of the perfect combination. Hubby and I have final say, of course, but we’re pretty clueless at this point. Please don’t tell me that you hate one of my names–I’ll only be convinced more of it’s awesomeness.

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