Shoes That Fit Over AFOs

Many children with disabilities will require some type of foot bracing. There are several options, but one of the most popular is the AFO, which stands for Ankle Foot Orthotic. Big and bulky, finding shoes that fit over them can be a pain.

Charlie’s first AFO shoes were from the company Hatchbacks. Hatchbacks are shoes designed specifically to go over AFOs. They come with a down-loadable sizing chart to guarantee fit. They also come with a steep price tag and are on the heavy side.

When Charlie first began using a gait trainer, he had a lot of trouble picking up his feet and the PT thought maybe his shoes were slowing him down. I headed out to get something lighter and the therapists kept asking me where I had gotten those great shoes! I thought I’d share my trick with you. There are two things you should know about this video: one, I forgot to say that your shoes should be at least 4 sizes larger than your child’s usual shoe. Less than this might still fit the AFO, but it may be hard to lace or velcro.  Second, I am slouching horribly in this chair. My husband assured me that I looked “relaxed,” but I think “sloppy” is a better term. Oh well. Don’t judge me too harshly–it took me three tries to get through this without laughing hysterically.

Other places that sell shoes that fit over orthotics:

Keeping Pace–limited choices, but they do have boots.

Piedro footware carries shoes that have the orthosis built in.Not too sure what the PT would say about that, but might be good for occasions where you’re not sure if you need orthotics or not, but want to have options.

Would love to hear from you guys about tips for buying shoes that fit over orthotics. No need to tell me to sit up straight and not slouch–the video speaks for itself on that one!

Feeding Evaluation

If you’re Facebook Fan then you know that I got a call on Tuesday asking that I bring Charlie in on Wednesday for a feeding evaluation.

It’s hard to describe the joy of knowing that your child is about to be entered in the special kids version of a spelling bee—one where no one really wins and with even the best outcomes, you’re not going to be called “normal.”

So, yay!

I was told to bring a variety of foods, so Wednesday at ten o’clock found me making mini-pizzas and grilled cheese sandwiches which is actually just two different kinds of bread with cheese. Shut up. I brought Goldfish crackers too.

We arrived promptly at eleven as instructed and I am told to wait with two other families whose children are there for enrollment in the gifted program. I don’t need to point out the irony. But I will. I’m there so they can see if my child can eat and these people are there because their kids are so incredibly smart they are simply unable to mingle with the riff raff normal folk. Can’t believe they let us sit in the same area.

more flowers 014Fifteen minutes later they arrive and we go in for our evaluation.

One little problem: No chair for Charlie to sit in.

They brought in a Rifton chair with a strap at the waist, but the waist isn’t really Charlie’s problem area. The problem is that he tucks his pelvis and slides out of a rigid chair. All of the chairs we use with him have a thing-a-ma-bob that goes between the legs that prevents him from doing this. I looked it up and apparently it’s not actually called a “thing-a-ma-bob” it’s called an “abduction block.”

Yeah. That thing. They didn’t have one.

The OT decides that she will simply hold Charlie in position. She’s probably fifty-five and the image of her bear-hugging Charlie into the chair is pretty comical. more flowers 018

I laid out my array of cheese covered breads and being his mother’s child, Charlie went for them like pre-pubescent girls after Justin Beiber. He runs his hand across the table, he shoves food in his mouth, drops it, picks up something else, puts something in his right hand for later, lunges to reach things that are clearly not for him. It’s fun.

Meanwhile, I’m answering what have to be the most detailed eating-related questions I’ve ever heard. There was basic stuff about history of pneumonia, suck quality, tests done, etc.

and then it got crazy.

Does he store food in his cheeks? Apparently Alvin, Simon and Theodore are looking for a fourth.

Can he breathe while he’s eating? Since he’s still alive, I’m gonna go with yes.

Is there anything he has trouble chewing? I said steak and SHE WROTE IT DOWN. I have trouble chewing steak. Besides, last time I checked, the school menu has no mention of filet. Hell, I’ve worked in schools, I’ll be lucky if he sees any meat besides the pre-formed meat patty variety. more flowers 017

In the end, he passed with flying colors. He has something called “rotational chewing;” he clears his cheeks; he eats hard and soft foods. He will continue to be followed by the dysphagia team because there’s no victory like the one they immediately snatch away from you.

They’re also going to add “thing-a-ma-bob” to his list of required equipment.

One Wonderful Thing

Want to hear some good news? Of course you do! So, you remember my wheelchair debacle? Well, our PT recommended the company to us, so I told her about the whole thing–I put heavy emphasis on the fact that I was going to have to shell out my entire deductible because they hadn’t ordered it last year when I placed my order. We basically said that we were going to order our chair through a different company because we were that unhappy with the situation.

Know what?

The guy called us and apologized. Apparently our PT called and gave him a stern talking to. He said if we order the chair from him, he’ll waive our deductible. WAIVE IT! Chair=free (for us, anyway).

I’m a happy girl.

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