Crazy Revealed

Ok. So here’s the deal: I’m giving the kids camel’s milk. I’m 98% sure this is legal. I had to jump through a bunch of hoops, so it’s not quite the same as buying it at the supermarket.

I’m giving August and Louis two ounces a day.

The rationale?

Supposedly, camel’s milk is folk remedy for food allergies.

Since I removed gluten from August’s diet I’ve seen two things: one, he’s doing fabulous, but two, when he is around it, he responds even more severely. He’s broken out in a rash after touching an unwashed tray that used to have pasta on it. He’ll eat a CRUMB and the dark circles show up. I thought maybe this could be a buffer for us–a chance for his stomach lining to heal a little.

Guess what? It’s been smashing success. Before the camel’s milk, August seemed good–he was spinning and flapping less, he was friends, his eye contact was great.

With it, he’s making progress. Yesterday I called his name and he came in from another room. Even if he doesn’t come when you call, he’ll stop and look or turn his head. He’s playing with new toys including ones that are more complicated than just pushing a button. But even pushing buttons is better than wandering around and not really playing with anything! Today I was showing him a flashcard with his name on it and saying “August” and he imitated me!

It’s good stuff. I’m not sure how long we’ll be doing this since it is NOT CHEAP, but for now I’d say it’s totally worth it.

He's a Happy Boy

He’s a Happy Boy


If the Tin Foil Hat Fits

So it’s been about two weeks that I’ve had August on a completely gluten-free diet. These weeks have been mostly glorious. Not perfect, but very, very good. I’m seeing less and less of the spinny stuff–in fact, I didn’t see one flap or spin. Even more important, I think, is that he is making progress. Before, he was kind of stuck. Stuck on the same toys, the same actions, etc. Now, he’s moving forward. He’s picking up new things, moving old things around in new ways, and is just generally comfortable with new. Other things I’ve noticed that are random: he looks when you point and say “look.” He’s making eye contact with his brothers and playing with them. It’s not organized play or anything, but he likes running around with them or pretending that the baby is going to “get” him, which he isn’t because the baby can only crawl backwards at this point.

Removing gluten has suddenly made him understand English. You call him to come eat and he comes, you ask him if he wants a bottle (yes, the twins are still total bottle addicts), and he smiles. He can still be a space cadet, but you can usually see what has him distracted. Today I was trying to teach him how to give kisses, and he started shouting “muh! muh! muh!”

These are all good things, right? I think a lot of people would be satisfied and call it a day.

I’m not most people, though. I can’t leave well-enough alone. Some days are still better than others. There are days when the dark circles re-appear under his eyes. I KNOW that there are other foods that bother him.

Someone on my FB page recommended the GAPS diet for kids with neurological issues. I bought the book, read it, and it made a lot of sense to me. So now I’m trying to get August closer and closer to that diet, which is extremely restrictive–basically, you can have meats, eggs, vegetables, and fruits. No grains. Some cheeses, but not all. The kicker, though, is that you have to make a LOT of your food from scratch because even tiny additives are believed to be problematic.

So here I am: making my own yogurt, my own grain-free-bread, nutrigrain bars with no grains, preserves, etc. It’s a lot of work. Crazy amounts of work. I do think it’s having an effect, though. I messed up and let August have sweet potatoes, which are not allowed–guess what? He didn’t do as well. A quick tweak and he was back to fabulous.

I’ve gotten really suspicious of food and the food industry. I spend way too much time reading labels and researching my purchases. Basically, I’m only of those crazy nutrition people that I used to make fun of.

Good times.

This was my attempt to capture what life is like at my house--Charlie is bogarting the TV, Louis is on the move, and August and Rex are calm and collected.

This was my attempt to capture what life is like at my house–Charlie is bogarting the TV, Louis is on the move, and August and Rex are calm and collected.

Milestone? Hell Yeah.

I’m so glad that I decided to write about joy because it fits in perfectly with the amazing thing that has started happening at my house.

I’ll back up a few minutes and say that two things happened at my house: One, I re-dedicated myself to making sure Charlie gets his ABR machine on every day. And, two, the glass on Charlie’s iPad busted and I had to send it off for repairs.

In the interim, we’ve been helping get his Lady Gaga video fix by putting Youtube on the laptop. Unexpectedly, he started doing this:


That’s his ABR machine around his waist.

This is a good thing, but he’s been able to do it for awhile. After a few days of this, he started knee-walking at Feldenkrais.

Sunday, he pulled himself onto his feet twice. He did two more times in therapy on Monday.

Perhaps the most-amazing thing is that the therapist reported that he’s doing it just like a toddler would. We need to teach him how to do it the way a five-year-old would, and his legs are incredibly weak, but it blows me away that his oh-so-pokey development continues to progress.

I’m thrilled.

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