Earlier this week I got a phone call from the woman who has now screened three of my children for Early Intervention. Somehow, in a flurry of paperwork, I’d signed a paper agreeing to have the twins screened for Autism.
I called her back and told her we didn’t want the screening and apologized for wasting her time.
So why don’t I want the Autism screening? Because I already know what it would say.
Both of the boys have a significant speech delay. They are both approximating words and using them at the correct times, but neither has two-word phrases and both make a lot of unintelligible noises. This alone puts them in the “at-risk” category for autism.
I don’t think Louie has autism. I think he has speech apraxia. I think August has developmental delay linked to his extreme allergies to foods. Could he one day end up with a PDD-NOS label? I think it’s possible, but I’m not ready to pursue it.
Every parent has to make the best decision for their kids, but for me, I’m in no rush to get them label. In fact, I want to put it off as long as possible.
I know where we stand. I know what my boys can and can’t do. I fill out autism screenings regularly just to see how they’re doing.
I’m not eager for them to be labeled, however. I live in label town–Charlie has enough for a village. I’m not afraid of labels. I am afraid of jumping the gun and sticking my kids with a label for the rest of their lives that they may or may not need. I will only look for that label when I think it will be beneficial and not before.
So no screening for us.