Archives for July 2013

Good Things

I haven’t posted in over a week! What a shame. . . I’m sure you were all just fine though.

We’ve had a lot going on, but nothing to crazy or chaotic–well, no more than usual.

Rex needs ear tubes. He’s had five ear infections in six months and two of those required multiple treatments, so Wednesday I’ll be taking him off in the wee hours of the morning to have them placed. I’m crossing my fingers that he won’t need to have his adenoids removed as well because that hurts a good deal more than just tubes and Rex takes things personally. I have no doubt he will blame me personally for any and all pain that he feels.

I finally did something I’ve been talking about doing for quite some time–I started a website for parents in my local area. It’s busy, but very fun, and we’ve already had interest from advertisers, so I don’t think I could be any happier with how it’s going. It has contributors, which is wonderful because now I have people that I chat with throughout the week about writing and the site. I feel like I’m pushing myself out of my comfort zone in a good way. We even have plans to do some in-person events and I think that will be great for me–I pretty much started living in my computer after Charlie was born and while I’m a big fan of the Internet, I do think it’s good to get out every once and a while and mingle with people who aren’t made of pixels and whatnot.

August had yet another mild gluten exposure and it’s like I finally woke up to the fact that he is going to be battling this for life, or at least for a long time. I want to treat his symptoms and then do nothing when he’s feeling well. That’s not working, though, so I’m giving him several supplements that encourage digestion and healing of the stomach lining. I figure if I can’t eliminate gluten from the the planet, I can at least minimize the effect it has on his stomach. This means he’s getting a daily dose of digestive enzymes, probiotics, and camel’s milk. I’m also adding in slippery elm when I can. I have some other stomach-friendly supplements/herbs I will be investigating and may add those as well. He’s acting happier and friendlier than ever and today I caught him singing the alphabet song along with one of his DVDs.

We are good here. I’m ready for school to resume, so I can get a little bit of a routine going, but life with the four kings is going pretty well.

I’ll see you around.

 

That Time I Turned Down a Screening

Earlier this week I got a phone call from the woman who has now screened three of my children for Early Intervention. Somehow, in a flurry of paperwork, I’d signed a paper agreeing to have the twins screened for Autism.

I called her back and told her we didn’t want the screening and apologized for wasting her time.

So why don’t I want the Autism screening? Because I already know what it would say.

Both of the boys have a significant speech delay. They are both approximating words and using them at the correct times, but neither has two-word phrases and both make a lot of unintelligible noises. This alone puts them in the “at-risk” category for autism.

I don’t think Louie has autism. I think he has speech apraxia. I think August has developmental delay linked to his extreme allergies to foods. Could he one day end up with a PDD-NOS label? I think it’s possible, but I’m not ready to pursue it.

Every parent has to make the best decision for their kids, but for me, I’m in no rush to get them label. In fact, I want to put it off as long as possible.

I know where we stand. I know what my boys can and can’t do. I fill out autism screenings regularly just to see how they’re doing.

I’m not eager for them to be labeled, however. I live in label town–Charlie has enough for a village.  I’m not afraid of labels. I am afraid of jumping the gun and sticking my kids with a label for the rest of their lives that they may or may not need. I will only look for that label when I think it will be beneficial and not before.

So no screening for us.

Not yet.

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Prostrate

August was good for quite some time and then suddenly, it feels, he was not fine.

It started with a nasty ear infection, and despite having ear tubes, it spread to both ears and to his eyes, and nose. I had no choice but to put him on antibiotics.

Before we even started the antibiotics, some of his old, terrible behaviors had returned: he hasn’t spun in months and suddenly he was spinning again. My heart hurt.

The antibiotic has not really helped. Well, the ear infection seems to be gone and the spinning has stopped, but he looks terrible. The dark circles are back under his eyes. He’s anxious and overly-excited. At school he squirreled himself into a corner and it took three agonizing days for me to realize he was scared of a friggin’ ceiling fan in the room next door to his.

And as I was turning all of this over in my mind, trying to figure out what my next move would be I though of the word “prostrate.”

Parenthood. Motherhood. It will break you. It will make you realize that all the control you think you have is just an illusion. If you don’t pray, I honestly have no idea how you make it through.

And right now I’m feeling a little bit like that. I’m feeling flattened by whatever has happened to August. Has he accidentally gotten gluten? he’s sure acting like it. Has he developed a new allergy? Have the antibiotics added some new layer to his stomach issues? Is this a setback or has something happened?

And when you’re flat, you pray. Or at least I do. And I ask God to help me out, or least help my kid because this thing is bigger than I am. Or bigger than I can handle on my own.

So for one of these reasons I find myself thinking about the word “prostrate” a lot. About lying yourself down and just letting things pass. Or about admitting that something is bigger than you are.

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Note: I wrote this on Friday. We discontinued the antibiotic and started a probiotic and he seems to be doing better.

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