{Wisdom Wednesdays} Have You Ever Tried Theratogs?

One thing that I’ve been wanting to do on this blog for like a zillion years is to start a collection of posts that are as much about the comments as they are about the post. I belong to a bunch of private message boards and there is a ton of great information on them, but private message boards can’t be found by Google and you have to join to see them. It’s a shame to let all that good information go to waste!

From here out out I hope that each Wednesday we’ll a have a post like this one–a post that lists an issue that I’ve spotted on a message board that other parents can comment and respond to. I’ll get the ball rolling with our own experiences:

These weren't put on very well, but they still helped.

These weren’t put on very well, but they still helped.

 

Have you ever tried Theratogs?

Yes! We have. We have found theratogs very helpful in getting Charlie to hold his body up straighter and we also noticed that he seems to hold these improved positions long after we’ve taken the theratogs off. The big issue for us and theratogs were the time involved in putting them on and the heat. Charlie overheats very easily, so we can only use Theratogs at certain times of the year–here in South Louisiana, that’s not very often.

Time was also a factor for us. Once Charlie got strong enough to start crawling, it can be difficult to get the whole getup without him crawling away halfway through.

Despite these limitations, I would definitely recommend theratogs for kids who are working on postures or who need a little support to become better sitters or standers–they seem to remind the child the best way to do these activities. When I think about things like splints and braces, this is/was the best product that we tried with Charlie.

Open Question: Have You Tried a Brace/Splint That Worked Really Well for Your Child? What Was It? Why Was it Great?

I’d now like to open up the floor for more wisdom. Have you tried a particular brace that worked great for your child? A splint? We tried some wrist splints for Charlie and he could take all of them off. We did night knee braces, but I don’t feel like they did a whole lot and they definitely made sleeping harder. I’m considering trying a Benik splint to help him get his index finger out for using the iPad, but I’m worried he’ll just take that off too.

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Comments

  1. Our daughter (almost 2) has done wonderfully at therapy with Spio pants – basically, tightly fitting lycra pants that help remind muscles where to go. Her PMR hates them, and insurance won’t pay for them, so we’re somewhat stuck. We tried Hip Helpers – worked great when she was little, but she immediately tore the stitches out of them when we tried again recently.

    Our son showed amazing progress with a single AFO (he has hemiparesis, a one-sided weakness due to a small bleed in the NICU). He went from walking ok to running practically overnight; his PMR was ecstatic about the improvement, and after about a year and a half, we graduated to an SMO for about a year, and now just to inserts for his shoes.

  2. Katy, this past year Luke has been wearing a DMO suit. It is a suit custom made for Luke which provides trunk support and also has built in panels to help with his overall posture. There seems to even be carryover once the suit is taken off. One of the best features is that it is lightweight and very easy to get on and off. Here is a link which describes it better:
    http://www.biometricsct.com/dmo/

  3. Have you tried kinesiotape? It wouldn’t give as much input as the theratogs do, but it basically pulls the muscles in a specific direction (depending upon how it’s applied) and can help tremendously in some kids, especially with core strength/support. And you can leave it on for several days, which is a big bonus, plus no overheating risk. Not all PTs are well acquainted with it for pediatrics as it’s more for ortho (I’m barely barely proficient myself), but with a little research, it’s not too hard to figure out and use. I highly recommend it.

    • Katie: We have never tried kinesiotape. I know one family online that used it. I bet it would help Charlie a lot–he does very well with “input.”

  4. SPIO vest! They are awesome! Works awesome for sensory input as well. We ditched the theratogs for the SPIO (we use under armor pants or shorts depending on the weather for the compression on the lower half. I cannot recommend them enough!

    When you order there is a 90 day warranty where you can use them and if they don’t work you can send it back. They are super awesome!