Not Annoyed in the Slightest

On Friday we had a flurry of appointments for August. First, an evaluator from Early Intervention came and did a speech evaluation. August was not his best. He ignored pretty much everyone, threw toys on the floor without playing with them, wouldn’t raise his arms to be picked up, and refused to make eye contact with the evaluator. This, added to his actual delays with things like waving “Bye bye” pretty much made him look like a human disaster area. Because I know everyone from when they worked with Charlie, they told me on the way out that they’d definitely be recommending him for speech therapy. The evaluator also pointed out a bunch of other little issues, but I think that was more a personality thing than an actual disability thing. Or I’m in total denial. One or the other.

From there, we raced to a nearby town for an evaluation by an audiologist. This time, the audiologist is an old sorority sister, so we gabbed for a bit about what was going on, what I was seeing, what I was thinking, etc. She pointed out how friendly August looked and acted, and then we went in for the actual test. The good news is that his “hearing” is fine. As far as I can tell, this means that his ear drum and bones are all vibrating appropriately. The bad news is that both ears are full of fluid. Since fluid can come and go without a parent knowing, this probably explains the pattern of good/bad that we’ve been seeing with August. When his ears are full of fluid, he’s not responding. When they’re not, he does a lot better.

I was advised to take him to an ENT who can tell us what the next step is–I suspect ear tubes since Charlie had ear tubes because of chronic fluid build-up.

The first available appointment is at the end of the month. Next moth that is. Meanwhile, I guess my kid just has to wander around listening to the world under water. I’m sure that’s going to be great for his speech and overall development. Sigh.

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Comments

  1. Poor August having ears full of fluid. Its so uncomfortble. (i had ear tubes in at 5)My sister has had ear tubes put in 4 times and taken out ounce.

  2. My daughter had the same issue when she was little, especially during the Spring and Summer months. One thing that did help some times was putting her on allergy medicine to dry up some of those fluids in the ear. I don’t know if that would help your son or not, he may be too young, although I am pretty sure my 3 year old grandson started allergy meds at a fairly young age.
    Lisa

  3. Paulette says:

    If he does end up needing tubes, I think it will help a lot. It wasn’t night & day w/my Charlie, as far as language development, but right away we could tell he was hearing better & responding to his name more frequently. In his case, it took a couple months of hearing clearly for the babbling and language development to start picking up again. Who knows how long he had been hearing poorly, maybe his whole first year.

  4. How can I say this… Stop looking for “things” to be wrong. All babies grow and process things differently. From everything you’ve said about Gus, my youngest went through the same things… and she was Saluatorian???? of her class. She didn’t actually speak until she was over 3years old… she didn’t have to, her sister knew “her language”.
    I know that may be over simplifing it but… Those experts have been wrong about so much. as you know with Charlie.

    Love you and your family!!

    • Oh, Nadine! I’m not looking–this is just all of the thing that they recommended for us to do when I started realizing that he didn’t respond to his name. I actually feel pretty dang good about the kid. Is he delayed? Yes, but I think we’ll get there.

      Love you too and thanks for looking out for us.

  5. I think hearing is very important and it shouldn’t be acceptable to wait almost 8 weeks for an appointment and then wait again for a date for tubes if that is what is recommended. My daughter has a hearing loss and it’s considered a VERY HIGH priority to get little ones in right away for hearing issues. I suggest calling your pediatrician and asking them if they can get an appointment earlier. I know ours always helps out with long lead times – I usually call and say “xx is the earliest date they can fit us in. Is this acceptable to you?” Sometimes it is, but in the early years it often was not and she then called and got us an appointment within a week. Perhaps you might want to try that?

  6. Thats great news with regards to the ears in that at least you now know why he has been ignoring his name etc and you have an explanation. Try to relax a bit now, August sounds like a typical little boy to me. Especially the misbehaving at his appointment with the Early Intervention team, just because they wanted him to cooperate doesn’t mean he wants to, thats a normal toddler! Take care : )

  7. We are doing another round of tubes, and ABR a sinus cleaning and a bunch of other stuff on the 15th. Parker’s ears. sigh. Parker’s ears. Those tubes just don’t like hanging out in those ears.

  8. Consider the chiropractor. My son was congested his whole life then started in a cycle of ear infections I decided to go against the dr.’s at one point (Why do another round of antibiotics it didn’t work last time). I took him to the chiropractor and fluid drained out of his nose for like 3 days straight. Then no more ear infections. He still goes on occasion (more in the winter) to keep him healthy. Our chiropractor was a Cranal Sacral Therapist/chiro that specialized in seeing kids. Anyway its worth a try it won’t hurt him.

  9. There is nothing more annoying and stressful than watching a child behave like a stranger at those assessments! Very sucky that the appt is so far.