Just A Mom

I was reading an article the other day on Salon.com about autism. It was a personal essay written by a novelist and somewhere in there she dropped the following quote from anthropologist Kate Barrett:

“Parenting today has become an acceptable out, what we call a ‘master identity.’ It’s become a way we don’t do other things in our lives: whether it’s fashion, whether it’s work, whether it’s romance, whether it’s fitness. Being a parent — especially being a mother — becomes an acceptable excuse for not doing other things.”

The novelist used this quote when she was talking about mothering a child with autism. She  was explaining about how she didn’t relate to mother’s who devote their lives to the care and advocacy of their child when there are other things they could be doing. Gosh, did those two thoughts stick with me. The idea that just being a mother is not enough.

I’m not sure I completely understand what anthropologist or novelists do, but I do know what I do. I am the interpreter between my child and the world. I am his advocate. I am a researcher, a teacher, and a therapist. I am the protector of his health and a record-keeper. I am preparing as best I know how for his future–pushing skills like reading and writing, investing in technology, and watching closely when others with similar disabilities succeed.

baby in a white hat

I am NOT a powerhouse mom. I’ve never spoken at the State Capitol about the need for services–although my state is one of the few that wait-lists children with disabilities (for as long as ten years). I still haven’t bought the dang Wright’s Law book even though people have been telling me to for two years now. I’ve never organized a group to walk or fundraised for cerebral palsy, or epilepsy, or even the March of Dimes. I’ve been to one PTA meeting and found it overwhelming to say the least. I admire the women who do these things, but I’m not one of them. I waste precious time on things like finding coordinating outfits for a special occasion. I goof off on Twitter, and obsessively update my Goodreads profile. I’ve probably wasted weeks of my life on Facebook.

Baby in a white baseball cap

I am just a mom. Some days I find myself scarily unambitious.  I’m not secretly filled with a novel or dying to start my own business selling jewelry or candles or cooking supplies. Most days I’m too tired to attempt anything more ambitious than reading a book.

two babies in white hats smiling at each other

It is enough–being just a mom: being a cook, a therapist, a teacher, a guide, a chauffeur, a nurse, an advocate, a cheerleader, and a personal assistant; being entrusted with mindless jobs like making bottles, reading food labels, scheduling appointments, wiping butts, singing silly songs, and reading that story one more time. Really.

 Boy in a white baseball cap

 

Maybe when my kids are older (and less needy) and I’m getting a little more sleep,  I’ll do something that the rest of the world finds more valuable. I could go back to teaching, which I found incredibly rewarding, or spend a little more time painting. They won’t ever convince me, however, that these jobs were more important than the one I’m doing now. It’s unglamorous and truly, anyone can do it, but that doesn’t make it less. I’m giving my children the foundation upon which the rest of their lives will be formed.  I’m passing my values on to my children in a physical way–hoping that this will help create adults who do the same. I’m walking the walk even when it’s messy, painful, and exhausting.

So yeah, I’m just a mom, and that’s fine by me.

Fear

Fear–such an obvious topic for a special needs mom to talk about, right? I mean, I should be filled with The Fear–will my child walk? Will he hold a job? What will happen to him when I die? But here’s a confession: I cope with all of these things using the Scarlett O’hara method–I just don’t think about it. Maybe not the best solution, but I’ve never actually solved a problem by worrying about it in advance and I spent a lot of Charlie’s infant days worrying abut things that never happened or if they did happen, it was as big a deal as I thought.

So basically it’s taken me a paragraph to tell you that it’s Charlie’s fears that I’m thinking about today.

Charlie’s a tough little kid. I doesn’t cry at blood draws. He handled a bunch of Botox shots in a way that I don’t think I could have. He’s very tough, but lately I’ve noticed that he’s gotten extremely fearful.

He used to love the water, but now he’s not capable of enjoying the pool at all, which makes me very sad. He will sit in the bathtub, but if I lie him down in the water, he is frozen with fear and claws at the sides of the tub.

The other day I sat him on the bottom step of our porch and he twisted awkwardly to grip the step behind him. He’s really good at sitting on a bench with feet flat, but when put in a new situation, he freaked out.

I’m glad he has awareness. We spent years dealing with medication fog, and it’s positive that he’s taking things in and processing them. I don’t want him to be scared of the world, though. Right now the twins are in a pulling up phase and about a million times a day I say, “It’s OK! People fall. Just get back up.” How can I teach Charlie that same thing?

Caution is good, but a four-year-old shouldn’t be fearful. I know he’s working with a body that doesn’t always do what he wants it to, but I want him to try. I want him to push. If he doesn’t, I can’t imagine he’ll go very far. I don’t know if this is some sort of stage, or if there are deeper things going on that need to be addressed.

So often I find myself sitting around wondering what the next step is–trying to find the path when it’s not clear. It’s one part intuition, two parts Google search, three parts the wisdom of others, and praying like hell I don’t screw it up too badly.

Boy not looking at the camera.

Too busy booging to look at Mommy's camera.

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