But we sure are sleepless.
For probably the last two years, Charlie has struggled with sleep. We have a rough patch, make adjustments, and then another rough patch crops up. It can take up to two hours for him to fall asleep and once he does, there’s a good chance he’ll be up anywhere between three and five AM. We have tried probably everything under the sun. No lights. Lights on. Early bedtimes. No bedtimes. Noise makers. No noise. Fan on. Fan off.Different rooms, different temperatures, different clothes.
We’ve tried a lot of different things and it seems like lately there are far more bad patches than good. When we finally got the point where he was sleeping a few hours each night and then two hours at school, we knew it was time to bring it up with the doctor. At our most recently neurology visit we discussed potential issues:
1. His cerebral palsy is causes low tone in the throat, and that, in turn is causing sleep apnea.
2. He’s having some kind of seizures either at night or while he’s sleeping.
3. His brain injury has made his body unable to properly regulate sleep.
None of these things can be diagnosed by looking at a child, so this past week we spent a good couple of hours meeting with a pediatric sleep specialist. She seems to be leaning towards possible apnea. Our neurologist is leaning towards regulation issues. Either way, Charlie’s on the schedule for a sleep study next week.
Yep. My preschooler covered in electrodes and trying to sleep. That promises to be veeeery interesting.
Either way, we’ll hopefully get some answers.