Thursday

2:00 AM: We receive a call from NICU telling us that Louis has been in tachycardia since about 12:30 and that so far they’ve been unable to get him out of it. Charlie’s issues all stem from uncontrolled tachycardia, so this is not a phone call we want to receive. They ask for some details about Charlie, outline a new plan, and tell us they’ll call when there’s a change. They ask us which doctor we went to about Charlie’s heart (Dr. Fancy Pants Electro Phys).

4:30AM: Pump.

8:00 AM: Pump.

9:00 AM: NICU calls. They are unable to get Louis’ heart rate below 200. They’ve called Dr. Fancy Pants and he’s outlined several courses of treatment, none of which our NICU is comfortable implementing. They’re making arrangements to have him transferred to that doctor’s hospital (a different hospital than the one they were thinking of moving him to a few days ago).

9:40 AM: Appointment with my OBGYN to check and see how I’m recovering from my c-section. I’m given the all-clear to drive.

10:15 AM: Husband calls. He’s at the hospital with the boys–Louis should be picked up any minute now. Drive directly to the hospital.

11:30 AM: Transport team arrives to pick up Louis. Much paperwork ensues.

12:30 PM: Pump.

1:00 PM: Drive across the lake to other hospital.

2:00 PM: Arrive at NICU #2 and am escorted to Louis’ bedside where a nurse is busy jabbing him with a needle. Neonatologist introduces me to two cardiologists who work with Dr. Fancy Pants. We talk for a bit and they write things down.

2:30 PM: Dr. Fancy Pants arrives with his entourage. The EKG tech arrives. Plan is developed–they will give Louis another shot of Adenosine (he’s had five at this point), and see what his heart does. They’ll read the EKG and move on from there.

3:00 PM: Adenosine is administered. Heart rate returns to normal briefly and then returns to the 200s. After examining the EKG, they decide that they’ll have to shock him. My mom starts crying.

3:15 PM: Doctor comes out to let us know that the shock was successful and Louis is back in regular sinus rhythm. I peek in on him and he’s fast asleep.

3:30 PM: Dash up to the Oncology ward to say hello to my SIL who’s receiving chemotherapy this week. She’s sleeping, so I head to the parking lot.

4:00 PM: Arrive at my parent’s house. Pump.

4:30 PM: Hop in the shower

5:00 PM: Head out to a blogger meetup that I planned back when I was still pregnant.

6:00 PM: Listen to a presentation on Word Press

7:00 PM: Enjoy a Sprite and truffle fries with some fellow bloggers.

9:00 PM: Pump

9:30 PM: Pack up car to head home.

10:30 PM: Arrive home.

11:00 PM: Pump

11:30 PM: Crawl into bed thoroughly exhausted.

Two kids at two different hospitals and not a great day for the pumping. Still, both of my boys are healthy and taken care of–the rest will have to figure itself out.

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Comments

  1. Whitney says:

    Sending lots of prayers your way – remember the best thing you can do is breath and pray. Keep us posted!

  2. MelissaInk Designs says:

    Oh, Katy. Glad to here the boys are stable. Still, though, you must be so thoroughly exhausted with everything going on. Continued prayers for all your boys and your pumping success :) Hang in there!

  3. Goodness Katy! I am so sorry that you have to deal with so much! Things can only go up from here, right! Hugs & prayers!

  4. I’m going to say it, you are amazing. Praying for your boys every day. I’m glad you got the all clear to drive, it’s the little things, right. I hope Louis stays stable, glad you’ve got Dr. Fancy pants working with him. Glad you are able to get some sleep. Thinking of you guys.

  5. Oh my gosh, Katy, glad you managed to fit the truffle fries in somewhere! I will keep you guys all in my thoughts and prayers and I hope that was the last of baby Louis’s problems.

  6. Katy, I am so sorry that you are having to deal with these things. Please know that I am praying for you and your family. Take care and keep us posted as you can so we know how to pray.

  7. Oh man. I’m so sorry. I’m glad you are able to compartmentalize enough to move about your day. Sending love and good thoughts your way. Those boys are going to be just fine, no matter what.

  8. Why can’t things be easy for once?? Keep up with the updates, Katy, and keep hanging on. I know you do.

  9. I thought the pumping thing was for the baby…. but it’s what you’re doing for milk. snicker snort. I really should stay away from typing, texting, and reading while on meds!!!

    I get so confused easily.

    but I glad to know that the twins are doing fine. And all that driving you have to do will be nothing with your are chasing after them for soccer and football and all those other things they will do.

    Give Charlie an extra big hug for me.

  10. Sounds like a crazy, stressful, exhausting day! Glad that both boys are in good care. Sorry to hear that they are in different hospitals, thus adding more craziness to your life. You will all be in my prayers!

  11. What a frightful day!
    I’m impressed by your strenght. Keep it up.

    Hugs

    Liseli

  12. Hugs, prayers & love.

  13. Katy, I’ve had a few really busy days and had not had time to catch up with you and the boys. Hope his tachycardia has subsided since Thursday. Huge hugs. I know you have to be rattled to the bone by this boy’s antics already. Call me if you need anything or just to have someone to listen. I’m good at that. :) xoxo

  14. Katy – WOW girl…I just finally saw this post…I hope things are improved since Thursday. Thinking of all of you…Thank the Lord you can actually drive now! Keep us all posted when you can. Hugs.

  15. Girl, I don’t know how you’re doing it all. Please know that you are in my thoughts and prayers A LOT. Wishing I could give you a big hug (or three)…

  16. Put that big pink sparkly Super S on your chest, girl. What a day. I really really hope things get better soon…you and your family seriously deserve it. Good job doing all this and the pump!

  17. *hugs*

    sorry to hear you’re having such a scary week. Hopefully things will be looking up, now that Dr Fancy Pants is on the case

  18. I am so sorry!! Praying for Louis. So scary mama!

  19. Oh goodness Katy! I felt my own heart racing at the thought of what your day must have felt to you. Heavy! Sending prayers your way,

  20. What a whirlwind! Many prayers for Louis and that everyone will soon be under one roof.

  21. Oh dear Katy – my heart aches for you. I remember pumping with moms of twins in my hospital baby days. My feeder/grower style early baby was housed with many twins in intermediate care who were generally OK but who needed to eat and get bigger. I felt so awful for being whiny about my own singleton in the nursery when I’d talk to the moms of twins who’d had one babe transferred away for more care and then have to bounce back and forth hospital to hospital. I really had less to complain about, but I did anyway. You have a rght to complain about this, Katy. It really is not fair. But you should pat yourself on the back for being acomplete ROCK STAR for pumping six times!! Woohoo! I wish I still had my Medela Freestyle so I could mail it to you. Do you have the handsfree bra yet? Since my babies never became good nursers, the handsfree bra changed my life. Possibly it is better than sliced bread, despite what you may have heard otherwise. Email me your brasize and address and I will send you one as a gift. (I am not kidding) Pretty soon you’ll be pumping while you commute between hospitals. The other commuters will love it!! But do be careful driving, honey. I learned that I may have resumed post c-section driving a little sooner than was safe. It was a superficial wound to the car (that parking garage was always hard, dammit, still is) but a bigger wound to me to learn that I could not, in fact, do it all. You are amazing and wonderful and I am sending you virtual hugs and some virtual Kleenex. Be good to you.

  22. Oh, Katy, what a day! We are already praying and will add some more prayers and continue to add you and the boys to our prayer list at church.

  23. I cannot believe this was all happening and you still came across to the blogger meetup! It was great meeting you, but I had no idea any of this was going on behind the scenes! Please let me know if there’s anything we can do to help, especially on the southshore!

    Jude

  24. Katy,

    My thoughts and prayers continue to be with you all. I don’t know how you’re doing all of this. I am so sorry the babes are now in separate hospitals. I can tell you we struggled with bradycardia (sp) for 2 1/2 weeks in the NICU. they almost sent us home w/ monitors. it was scary and unsettling and unfortunately a “preemie” thing. they’re just so little and it’s hard for them to get everything together.

    i hope and pray things improve soon and that the boys get to come home.

    sending lots of love & hugs!! xoxoxoxoxo

  25. I will be praying for you all and sweet baby, Louis, for sure!

  26. Dude. You are my hero. And yet also, I know that what you are doing is just… what you must. What else CAN you do, right? But your attitude always amazes me. Know that I am thinking of you and your boys often. Is there anything you need? Anything I can send you to cheer you up or make your life easier? Please let me know; honestly, I love sending stuff, so if there’s something you’d like, email me and I would take great pleasure in sending it your way!

  27. *hug*

  28. Janet Brandy says:

    Extra extra prayers heading your way. <3

  29. Katy, thinking of you and your rockstar boys. Hang in there! You are amazing.

  30. Katy – Just updated myself by reading this post and sorry to hear things are not going as well as you would like. You amaze me with your ability to stay positive. Thanks for coming to the blogger meet-up despite all of this; we would have understood if you weren’t there though. I guess distractions are helpful. I’ll keep myself updated here and hope to see you again soon. Lots of love to you all.

  31. Katy-
    I’m just finally remembering to come and read your blog instead of relying on FB and Twitter. :( I wish I hadn’t waited so long.

    I hope that Louis did better this weekend. I’m praying for all of you. I know that you are super strong. Are you over here on my side of town? Let me know if there’s something I can do for you.

  32. Holy smokes! You had quite the day there. I hope the babies are doing well and getting stronger and healthier every day. :)