Seven Reasons You Should Hate Me (but I hope you won’t)

  1. I’m from New Orleans and live in south Louisiana, but I don’t like seafood.
  2. I don’t like plain chocolate. Chocolate is OK with peanut butter or mint or caramel, but by itself? I’ll pass.
  3. My child has made a fuss in a restaurant twice. In his entire life. He is the best restaurant kid. Strangers compliment us on his awesome behavior.
  4. My MIL comes over on most Sunday mornings and watches Charlie while Hubby and I sleep in. Heavenly! Except I do have to get up and call her and tell her when he’s gotten up–I know, poor me!
  5. I don’t like pictures of bare pregnant bellies. I know reproduction is a beautiful and wonderful thing, and I don’t mind that other people take pictures of their bare bellies. I just don’t like them very much.
  6. I don’t understand what the big deal is about Rhianna. I mean, yes, she has a nice voice, but it’s nothing like Beyonce’s. I mean, she’s a perfectly good singer, but I think people make a little too much of a fuss over her.
  7. This adorable guy lives at my house:boy sitting in leaves and smiling

Don’t hate me!

Christmas Recap

Big events like Christmas give me a chance to reflect. A chance to see how far Charlie has come in terms of development and probably a little bit about how far I’ve come in acceptance.

I dubbed Charlie’s first Christmas, seizure Christmas. He’d started having what I knew were seizures a few days before and with the holidays, there was nothing I could do but sit and wait for an appointment. I remember sitting at Christmas dinner, holding Charlie as he had a seizure while my sister-in-law comment on how active he was. It was horrible.

Needless to say, my six-month-old child didn’t really have the energy or will to do anything that Christmas.

Christmas number two, he was oblivious. Wanted nothing to do with new toys or presents. Nothing. Familiar was the only way to go.

Mischevious smile

Last Christmas and this one, I’ve seen a change and I just love it. He sees the presents and wants them. This year he very determinedly put each package in his mouth. He got mad when it took a long time to get the toy out of the package. He picked up new toys and started playing with them immediately. He chewed delightedly on the box of a new video.

He does still hate to tear wrapping paper–once you start that, he pulls his hand away in disgust.

Still, normalcy is nice. A happy child is nice. We can work on the wrapping paper.

How was your holiday?

Boy smiling

My Christmas Story

Back when I was pregnant with Charlie, I served on the Visual Arts Committee for my church. Our church had a very involved fine arts ministry and services were sprinkled with arts of all kinds–film, music, theater, and even interpretive dance from time to time. It was a pretty wonderful place.

You can imagine that at a church like that, the Visual Arts Committee didn’t take itself lightly–we might discuss and argue over a concept for several hours.

So there we were one weeknight in November, discussing what was supposed to be a quick installation going up through the Christmas season. The director of the committee, a church employee, wanted us to incorporate the lyrics to a song we would be singing. The song was Made to Worship by Chris Tomlin and somehow we were drawn these particular lines:

When you and I embrace surrender,

When you and I choose to believe,

You and I will see,

Who we were meant to be.

We tossed around a ton of ideas and finally someone suggested an image of Mother and Child. I had just found out I was pregnant–hadn’t been to a doctor or anything yet–and so the idea of a mother and child brought up some very concrete ideas for me. Specifically, I was struck by how out of control I felt. A born planner, I suddenly had a life growing inside of me and I was well-aware that it was just doing its thing without any input from me. Amazing, but also frightening.

I had this idea that we should do the mother and child scene with a twist. Instead of looking down, Mary should be looking up. In my mind, that was the ultimate surrender–just looking up at God and trying to figure out what the heck you’re supposed to be doing. I was sure feeling it in those early days of pregnancy–Caffeine or no? cold medicine? What about nail polish? The weight of my decisions was almost paralyzing. I couldn’t even imagine how Mary felt when selected to be the Mother of the Savior. I could barely decide if I wanted to take baths any more.

The committee thought I was a little odd. Tradition prevailed and we had a very classic mother and child image that year. Litte boy in pajamas

Many, many months after Charlie was born, as I was struggling to figure out the why of my new life, I found myself turning the words to the Chris Tomlin song over in my mind. Embrace surrender. Don’t just surrender, but embrace it–accept that we never really have control. It’s hard as hell, but I think it’s the only way to do this thing. No amount of wishing on stars is going to change Charlie’s brain. Hoping things were different is a waste of time and energy. This is all I’ve got, so I better get on board.

And so, embracing surrender became my new motto. It’s not always an easy one–I fail at it all the time–but I try my best.

Charlie was probably over a year when I remembered my argument for the upward looking Mary and realized how relevant those ideas were to my current situation. Mary didn’t plan to give birth to the Savior–as far as I can tell, she didn’t even volunteer. She was drafted. Just like me. I was minding my own business when I got selected by fate to be the parent of a special needs child. There’s no handbook for this and figuring out what to do is often a pile of guesswork.

I’ve had to embrace the situation that I’ve been handed. I’ve researched medical equipment and alternative therapy until they were making appearances in my dreams. I’ve ridden air planes to foreign countries when I hate to fly and I hate to travel. I can quickly and easily run through lists of medical conditions I never knew existed. I didn’t choose this life–this life chose me.

At Christmas time I’m reminded of Mary. Of the sacrifices she must of made when she was chosen to be Jesus’s mother. She was probably hoping for an average, normal life, but that’s not what she got. Life is unpredictable. We can fight that or we can accept what we get. That might not be the meaning of Christmas, but I am sure am aware of it this time of year.

For those who celebrate, have a very Merry Christmas.

Boy in a wheelchair wearing pajamas

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