Archives for July 2010

Disability Services: More of the Same

I mentioned in my previous post that a woman from our parish called to tell me that they would be reviewing Charlie’s case again to see if we  qualified for more services than we are currently receiving (now we get none). Frankly, I was shocked. Louisiana is one of a handful of states that has a waiting list for in-home services. Basically, if you are a disabled minor in Louisiana, they put your name on a waiting list and after about eight or nine years, you might actually get some type of help.

Help can come in all shapes and sizes–modification to your home to make it wheelchair accessible, a respite worker, or maybe a care individual to help with bathing. The best part of the deal is that your child gets a Medicaid card–Medicaid is known for paying for equipment when private insurance won’t.

These all sound like nice things, but like I said, eight or nine year wait, so I wasn’t exactly holding my breath.

So a call telling me our case is up for review is a little strange. I’m not getting my hopes up or anything, but it is interesting. I had to answer a few questions so they had an accurate report for the review committee. The woman on the phone ran through a list to describe Charlie:

  • Long term need for a wheelchair
  • Brain damage
  • Epilepsy
  • Limited vision
  • Limited use of his arms
  • No use of his legs
  • Non-verbal

And man, that’s a tough description.  It’s hard to think of my child as a list of deficits.

So, for the sake of my sanity, I made my own list. Charlie is also:

  • Determined
  • Resilient
  • Spoiled
  • Adorable
  • Analytical
  • Sneaky
  • Curious

He is many things and while I understand the importantance of measuring his limitations, a list of them does not do him justice.

Child in Wheelchair

Charlie is getting a molar, so I can’t get that hand out of his mouth these days.

Good Things

I’ve been having a fantastic week. So fantastic that I’m almost scared to blog about it, but whatever! The Law of Attraction people say to be thankful and I am. So, in no particular order, things that are making me happy:

  1. My talk at the library about social media was SO FUN! It really ended up being a rather long discussion about Facebook, but I knew the answers to everyone’s questions and got good reviews from the audience.
  2. As a result, the library has asked me come back and do some more talks. I love this. I loved teaching and while this is a lot easier than my last gig, it’s still a complete blast.
  3. I *think* that I’ve found myself a small job that will run through the months of Sept-Nov. I can work from home and it’s very part-time, but it’s nice to have something to do while Charlie is in preschool.
  4. A lady from the parish called to tell me that they will be considering Charlie’s case to determine whether or not we may need more assistance in the home. This has caught me completely by surprise because I was told he would be seven or eight before they offered something like that. It’s just a “consideration,” but I’m still impressed.
  5. My blog design–things are going fabulously–I’m hoping I’ll be able to share things this week, but you never know. Still, I’m excited!
  6. The Bird on the Street Facebook Page–today we hit 110 “likes.” I am over the moon. When I started the page I was hoping for a couple of people. This has just exceeded my wildest expectations.

Five Years

The extremely talented Alexa from Flotsam posted a little piece the other day about how she’s been blogging for five years. I’ve been blogging since late 2005, so not as long as Alexa, but I definitely related to her description of how blogging used to be a rather secretive and perhaps weird thing, and how now it’s become more socially acceptable. I’m assuming this must be true since even my mom reads blogs these days.

Alexa did a little recap and I feel inclined to do one of my own. Please humor me in my nostalgia.

Homes Owned: 2

Places Lived: 3

Days hospitalized: 3

Days Charlie was hospitalized: 43

Personal surgeries: 1

Charlie surgeries: 6

Days Husband was Deployed: 126

Hurricane evacuations: 1

Trips to Little Rock: 3

Blog Posts: 904

Books Read: 97 (to the best of my recollection)

Weddings Attended: 5

Weddings I Stood In: 2

Internet Friends met in Real Life: 7

Vacations: 3

Pounds Heavier: 10

My life has changed volumes since I started blogging, but the record is nice to have—even if there are some parts I can’t bear to read. What have you been up to?

 

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