More Bliss

Without a doubt, the best part of Blissdom for me was that I left with a sense of purpose. For the most part, there’s no one in my day-to-day life that has any desire to talk about my blog. They don’t know what Twitter is and I’m sure they don’t understand the drive I have to regularly discuss my life with strangers. At least one person laughed out loud when I told them I’d spent the weekend at a blogging conference.

Blissdom was the polar opposite of that. I talked and talked and talked and somewhere in the middle of all that, I realized what I’m doing here and better yet, what I want to do here.

Please bear with me as the sappiness factor is about blow sky-high.

I believe that my life is good–not perfect–but good. I believe that the problem with disabilities isn’t the disability, but the rest of the world–a world that doesn’t see the good and the beauty in difference. A world that isn’t ready to embrace the unfamiliar. I’m not interested in a pity-party. I don’t want anyone to feel sorry for me. I have crappy days, but I had those before Charlie and I’d have them if his brain had never bled and his heart had never failed.

I want this place, this space to be a resource–a place of inspiration, a place to learn a little something, a place of encouragement.

My first two years of college I lived in a dorm. On any given day, you could take a stroll and find someone else who was worried about their classes, who had relationship problems, or maybe just someone to go to the cafeteria with you. I remember staying up late, talking in the hallways and stairways about whatever was on my mind at the time.

I want this blog to be like that dorm. If only five people read it, then that’s fine. I’m not blogging for money or recognition–I’m blogging for community. Blissdom made that clear for me and also made me realize that it’s OK to be that kind of blogger. I can’t be anyone else no matter how hard I try–I can only be me.

So here it is, my mission: I want live joyfully. I want to encourage others to do the same. I want to help other special needs mothers enjoy their children and maximize their potential.

Who’s with me?

Me and my doppelganger at Blissdom. I was trying to avoid her, but Ellen insisted we take a picture together.

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Comments

  1. Be you..original, fuuny, irreverent, caring. We like you as you are!

  2. i'm with you, katy! i love reading your blog even though i don't always comment. here's to living joyfully!

  3. MeghatronsMom says:

    You're blog already is all that to me.

    LOL on your doppelganger!

  4. LOL! That's frightening, Katy! You already do such a great job on your blog. A lot of us out there, in the trenches, aren't able to have that clarity for a very long time, so it's great to get that from you! Keep it up, we love ya!

  5. Wherever HE Leads We'll Go says:

    I love reading your blog. I love your attitude about life and all the ups and downs of raising a special needs child. I tend to be a glass is half empty, the sky is falling kind of person. What you share on your blog is level-headed and real and I appreciate that. When I need to be reminded that the sky is not falling, I know I can count on your blog to do that.

    That picture cracks me up. Great minds think alike!

  6. I love your attitude! Who needs money for words anyways :-) Lord knows I don't…

    Oh and the deodorant thing…..hilarious! I forgot my toothbrush once. FYI the hotel has a concierge of goodies just in case you forget something. But it's too late now and the story is way worth it!

  7. Blissdom sounds so exciting. A conference full of people who "get" this blogging thing? I need to go someday.

    And I love what you said about creating a place that is supportive and hopefull, and helpful as well. That's what I'm trying for. Sure, I'd love to have more readers, but the people who visit and comment are so wonderful. And I've met some awesome folks on the net (Katy).

    So keep up the good work.

  8. Yeah for community! That's exactly what I'm looking for too…but I don't do it as well as you do. And that's OK. I do my best and get to connect with other amazing moms (with amazing children). So glad you're here.

  9. Melissa, Multi-Tasking Mama says:

    What a good time I had and you too! I love hearing everyone's takes on the conference..I had such a good time!

  10. I loved love love your attitude about disabilities- there's probably nothing INHERENTLY harder about raising a kid with developmental issues than one with normal kid frustrations, it's just that you have DIFFERENT stuff to deal with. The problem is everyone acting all awkward about it or, like you said, thinking that yours or Charlie's life must be automatically harder or sadder than someone else's because it is different.
    I love coming here to read about what new opportunities you're exploring for Charlie and what new stuff he's doing, what parenting issues you're going through, etc- all the same stuff I like reading about on every other mommy blog! I love that you have made disability so much more relatable and un-foreign to me. My sense of pity or fear of the unknown re: disability/delay is so diminished just from knowing you. I have only recognition of another mom and another kid, figuring out their relationship just like every other mom and kid in the world!
    Sorry for the sappy. Hormones, you know. But seriously- thanks to you I almost never worry about stuff like Downs or birth defects or chromosome issues anymore. It is what it is, and you figure it out as you go, just like with ANY kid. It's just… less of a big deal to me now, just from reading your blog.

  11. Katy,

    I'm moving into the dorm. I'll bring myself and my crazy family (or is it my crazy self & my family? well, whatever!)

    Okay…. just had a brain explosion. Let's go to BlogHer… I just applied to "volunteer" so that the conference fee is waived. Want to "volunteer" too? I'll send you the link…. It's in NY this year. Like August 5 … Let me know!

  12. Nadine Hightower says:

    Count me in!!
    You know before I signed up for Team Charlie, I was a member of Team Katy! And still is a huge fan.

    I love that dress!!! So at least we know What She Wore.

    Recently…like yesterday…I was nominated for Best Humor Blog for Oklahoma. Oh you know I'm over the moon! So this am I had to tell someone. I told Roy. He doesn't understand it at all. He has no concept of blogging and is always asking me questions about tweeting and blogging when he hears about it on the news. "I don't see why anyone would tell people such details." He knows I blog. He knows I tweet….he just has no clue to what I say. But I had to tell someone. And with tears in my eyes I told him. He hugged me. and fought back his own tears becuz he wasn't sure just exactly what was going on…but he knew he needed to tear up. And I said with big sobs, "I'm so Happy!" He giggled. "And you're a nutcase!"

    It's a nice thing to be noticed others. But I do really love my little circle of friends. I'm a bit envious of the big blogs but they're not friendly, they don't reach out to be friends. There's no interaction. So I'll keep my circle.

    Love and Hugs!!

  13. I'm so glad you're back with a renewed sense of purpose! Sounds wonderful and I can't wait to enjoy the ride with you!

  14. Thanks for sharing this. It's just what I needed to hear.

    I, too, want to help others along this journey. New moms trying to figure out tube feeding, experienced moms who can teach me, just knowing I'm not alone in this.

    So, yup, I just gotta be me. And if it's only 5 people reading my blog – that's OK because I'm finding friends with 5 amazing people! :)

    Have a great day!

  15. Vodka Mom says:

    It was a pleasure to meet you and HANG out with you.

    You are amazing. :-) And that dressed ROCKED.

  16. Yes. Yeh-ehss. COMMUNITY. Whenever I mention blogging, people are kind of like, "Uh huh, blogging," and I can tell they don't know this part of it at all.

  17. Katy, so sorry we didn't meet at Blissdom. Your post resonates with me as I too live in a community where no one understands my blogging passion. And yes, I had a few people laugh at me when I told them I was going to a blogging conference. Blissdom was very confirming for me in that I am now assured others are blogging for the same reason I am….to be connected to a community outside the area of my existance. Stay in touch.

  18. Love you, Love Charlie, Love your blog! I'd like to move intot the dorm too:) Its so nice to be able to have someone to go to who also gets blogging. Keep up the good work!
    oh, ps, you did get a lemonade award, from yours truly:)

  19. Love that dress! I'm glad you had a good time, and that you made it back safe. Blog on with your bad self.

  20. Katy,
    I read your blog but do not comment much. I love what you said about disabilities. From your posts I get inspiration, learn something, and get encouragement. Continue blogging strong!

  21. love the mission… you are totally already there, but keep up the good work!

  22. Great recap, and let me know when orientation is, I am interested in a place in your dorm! :)

  23. That wasn't too sappy at all, love the perspective on blogging… and LOVE your dress.