The Next Phase

It takes a long time to get over the fact that your child has been given a life-altering diagnosis. Really, I think “get over” is the wrong word. It takes a long time to make peace with it. And of course, you have those moments that crop up from time to time–where you compare your child to one the same age. Or when you see pictures of your friend’s children.

For the most part, however, I feel peace about where we are. I work several hours a day to give Charlie my version of the best life possible and when my head hits the pillow, I’m usually content with the way things are going.

I’m finding that there are things after the grief stage.
These days I find my mind wandering towards making changes. I see things that are wrong and I want them fixed.

I have no idea where this will lead me, but that is fine. Having Charlie as my child has meant throwing out the rule book and seeing where life takes me–I can only assume that this is the next stage in the journey.
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  1. CountryCouture says:

    This post reminded me of a story my friend included on her blog the other day. Have you ever read the "Holland" analogy?

    Love the pic of y'all on the slide!

  2. I have so much respect for you. You ooze calmness and peace.

  3. Katy,
    GOOD post! Very real and I appreciate it, so much. It is a tough row to hoe, that's for sure. You seem to have come to some acceptance, wonderful. It has taken me a lot longer to get to that point.

  4. Anonymous says:

    I love this post!! and the pictures are beautiful!!

  5. So nicely said… And that picture of Charlie in the swing is just PURE HAPPINESS.

    I think I started feeling more peaceful around when Max was Charlie's age, too.


  6. I liked this post. I'm still in the grief stage, and hard…nice to see there might actually be another side to look forward to.

    Just wish the acceptance stage would friggin' get here already…this grief shit is driving me nuts. :)

  7. i'm with blogzilly. so sick of the grief stage. It still comes & goes in waves. Like today after coming back to work after another useless OT appointment. I swear we have been swinging on that swing for 2 years now. Glad you have found acceptance. I love your post as usual!

  8. Nadine Hightower says:

    Looks like you had just as much fun!!

  9. Baylee and Blair's page says:

    You are such a strong Momma!

    I love the pics… the new camera is awesome! I love my Canon and am having so much fun taking different pics with it!

    What kind of software do you edit with?

    Hugs – Tiff

  10. I love his smile on the swing! Great job, Mama.

  11. Excellent post!

  12. Love the pictures! It was such a fun time. Charlie had fun, too, which is always great.