More Randomness

We’re back from Plano and I’ve gone through my usual stages of ABR–at first, I go to these things and I am simply OVERWHELMED by the whole thing. I mean, if I’m being honest with myself, I may use the words “special needs” and “disabled,” but in my mind Charlie is just Charlie. The way he acts and behaves is the epitome of normal and I only see his differences in comparison to other children. To go to ABR is to confront disability head-on. There are older children there who are clearly disabled and there’s all the equipment, and you can’t deny that all the children involved are, in fact, special. It’s like reality hitting you in the face a little.

So, I get a little discouraged.

But then, as I head home, I start thinking about all of the the things I will be working on with Charlie and I get EXCITED. I mean, I am hot-diggity-dog excited to be working on the underside of his jaw. You know that turkey neck part? Well, we’re going to be working on making Charlie’s less turkey-like. Supposedly this will help with speech and eating. How cool!?! Charlie seems to eat OK, but helping is good and he could definitely use some help in the speech department.

So, now I’m jazzed. I’m ready to get moving and start working on Charlie again. Woo hoo!

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  1. Heather says:

    Oh, I meant to say, Yeah! for Charlie and ABR. I hope you see some results!

  2. Heather says:

    Hey, Bird.

    I’ve commented one other time on your blog to tell you I love your decorating. I felt like a dork after because all the other comments were more “on topic”. So here’s a comment on topic:)

    When we found out Nathan had CP many of our family members who lived out of state called in tears. While I’ve shed plenty too, I found myself dry eyed and a bit irritated with them. Nathan was still Nathan. Suddenly to them it’s as if he’d been disfigured beyond recognition and sentenced to death. I stopped anwering the phone but probably should have invited them to visit for some hang out time with Nate. I don’t know.

    Anyway, as mild as Nate’s CP is, I find PT difficult sometimes. He commando crawls just great on the floor but the PT makes him do things that challenge him. That’s when I really see he’s not quite typical. (I’m not sure the appropiate way to say that). His little legs are so tight, his toes so curled and he struggles. Nate is cognatively on mark and his frustration at not being able to do things is increasing. That’s good and bad, I suppose.

    So I don’t know where I was going with that but I really enjoy your blog. There were a few days a while back when you didn’t post. I wanted to email you and say “Katy,where are you? I need a little somethin’.” Thanks for the somthins’ so often.

    Hmmmmm, I’m not sure how my second comment ended up there and my first below. It’s late, I’ve gotta go to bed.

  3. Well I can’t say that I understand completely. But I can say that as a mom you do everything in your power to help your kids thrive and develop into the very best person they can be–whoever that is, and nobody knows for sure. Your blog has really helped me “get it” a little more–and I totally feel your excitement!