It’s the Little Things

If you’ve come to enter the give-away, then that’s the post before this one.

Charlie will be turning two at the beginning of June and certain things are starting to dawn on me. For one thing, he’s not a baby any more. He understands SO much more these days, and he’s also getting quite big. For the first time I am realizing that he actually disabled. I look at him and he look like a perfectly normal little boy who happens to be lying down. The thing is, he can’t get up. In so many ways he is normal–he has opinions about food, and music, and television. He likes to crawl around his room and play with toys. He loves it when his therapists come to “play” and gets aggravated when I linger too long while shopping.

So, yeah, he’s disabled. I can’t really deny it any more, and while that thought does make me sad. . . I am feeling so many other things too.

I am so grateful to have this little soul in my life. He IS work, and he IS disabled, but he is also joyful and mischievous and delightful.

We came so close to losing him two years and ago ( I realize that I STILL haven’t really gone into all the details of Charlie’s brain and how it all went down. I want to do that, but it is very, very hard to write about), but here he is–living, breathing, and thriving. I find myself trying to give him some kisses, but guess what? He’s almost two and he’s not real interested in Mommy’s kisses!

Charlie discovering the joys of Baby Signing Time DVD’s.

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Comments

  1. therextras says:

    The photo says so much – a perfect accompaniment to what you shared.

    Computers are part of the time-warp for making predictions about what Charlie will accomplish.

    Thanks so much for sharing Charlie, and yourself, with the rest of us, Bird. I *heart* you and him. Barbara

  2. Nadine Hightower says:

    He’s 2!!!
    Woo Hoo…the terrible 2s!

    He has came a long way.

    Love and Hugs!

  3. AshleyS says:

    He is a special soul! Sometimes it takes a while to wade through the busyness of all the initial medical stuff to take time and enjoy our special little kids.

  4. TWO?! I feel like I just discovered your blog, like, LAST WEEK. But I guess it’s been a while, huh? I’m so happy to be able to share a little bit of your Charlie.

    Hey, I wonder how you’re liking that Baby Signing Time video? I’m thinking of investing… Emmett has some verbal delays and I’ve heard good things about that particular video.

  5. Small Town Girl says:

    When you’re ready you’ll share, but until then we’re perfectly happy reading about you, your family and of course Charlie. Besides, I have a feeling that particular story would be hard to read, too.

    So what’s the plan for Charlie’s 2nd birthday?

  6. Yep, this is that time. The one where they should be walking, but aren’t. The one where it hits you in the gut some days. It gets better, I promise.

    I have a ten-year-old son with hemiparesis caused by a stroke. I don’t know the extent or specifics of your little one’s CP, but I’ve been at this a while. Please feel free to e-mail me with any questions you might have.

    Enjoy that beautiful little one: He’s a special blessing!

  7. That is one sweet, beautiful boy you’ve got there!

    My “little” guy is now seven and I will never stop giving him kisses, whether he wants them or not (and I know he secretly does). :)