Recap

Well, I intended to update every day, but hanging out and having a good time won out in the end, so here’s a recap of the rest of our trip. . .
I mis-typed the other day when I said that I was going to be learning five new exercises–I will be learning four new exercises. We are working on a new part of the jaw, the place where the neck meets the back, the sides of the rib cage, and the “clavicular groove.” I like saying clavicular groove–I think it sounds like a crazy dance move.

Working on the rib cage area while Charlie naps.

Gavin, our trainer, spent a little time looking at Charlie’s various moves and also his structure although they won’t do a detailed evaluation until we return in May. He did say that the way Charlie rolls is excellent and indicative of progress, so that’s a good thing! I told him a little bit about the work we’re doing with Feldenkrais and he seemed very pleased to hear about that as well.

I guess the final thing that I’d like to say is to comment on one of the un-spoken benefits of ABR–all the parents. Parents who pack up their stuff and attend ABR training are their own breed–they are aggressively pursuing a lot of options for their child. I’m not saying that you have to go to ABR to be this way, but I do find that parents who are willing to fly to Canada to try an unproven therapy tend to be this way. I spent a lot of time trading information and “product reviews” with Fletcher’s mom and that’s extremely valuable to me. We also spent some time talking about our kid’s structure and their various strengths. Erin gave me some ideas for working on speech and I showed her some of my favorite toys–I have a bit of a toy obsession. I am constantly trying out new toys to see if Charlie can work them.

Fletcher’s mom and I. Apparently Charlie find picture-taking uninteresting.

So, we’re getting ready to head home now. I had a blast in Plano, ate a ton of delicious food, and now I have four new exercises to try.

My SIL and I napping while Charlie plays.

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Comments

  1. Like I said in my last comment… it was great to talk to you, too. I whole-heartedly agree that meeting like-minded parents has been a HUGE perk to our ABR experience as well.

  2. Man, that’s a cool headboard. You’ve got a great sister-in-law. I’m glad to hear the trip to Plano is going well.

  3. therextras says:

    Like seeing you smile, Bird – I almost asked for smiles in the last comment, but figured I was lucky to to see you in photos at all. Speaking of which, who took the last photo?

    Your comments about getting together with other parents is something lost with EI (natural environments or in-home) services. Prior to that, parents did meet and support each other and trade info at out-patient treatment centers.

    EI is the last subject on my all-call for topics in December. Hoping you and Erin will continue to share your stuff on my site, between working on and with Charlie and Fletcher, of course. Barbara

  4. Nadine Hightower says:

    The TigerWear!!! I love it!!

    And I’m very happy you’re having a good time. You needed it.

  5. Small Town Girl says:

    Sounds like a successful trip all around!

  6. I love hearing about the ABR therapy. It sounds like you had a great trip and always love seeing pictures of you and Charlie!

  7. White Hot Magik says:

    Catching up and it sounds exciting. I am glad you got to meet with like minded people, that always makes me feel better.

    I would be hungry after reading all the food descriptions, but I smell something awful,must go check on son and dog….

  8. Hi! I’m interested in hearing about the ABR therapy, too. FYI, here’s a link to another blog, she’s always doing ABR with her little boy:
    http://terriblepalsy.wordpress.com

    You are one awesome mother.