Ch-ch-ch-changes

Well, I’ve been trying real hard to take some pictures that document Charlie’s progress, but that’s easier said than done. I tend to delete pictures I don’t like, so I don’t have a ton that would be good for comparison’s sake.

Here are the changes I’ve noticed in Charlie’s body:

Charlie’s neck has made the most changes. His Adam’s apple has moved down and rather than being under his chin it’s now at the very top of his neck. I’m starting to see all the veins and the shunt in his neck and he does a much better job of picking up his head while on his stomach. I can’t wait to work on the back half of his neck!

He’s lost one of his eyes here, but you get the picture.

His abdomen has made major changes too, but it’s hard to really capture that in a photograph. His ribs used to be almost pointed at the bottom of his rib cage–the whole thing looked like a diamond. Now, he still looks like a rounded diamond, but that’s still an improvement. The big change in that area has been how much flatter his chest has gotten. The bottom of his rib cage used to be the highest point of his abdomen. Now, it’s flatter and more balanced. When I pick him up I feel how much stronger he is. Best of all is the un-measurable: sometimes Charlie will be sitting in some one’s lap and he looks complete and utterly normal. I think all special needs mommies do that thing where we stare at our child and wonder if they’re “passing” for normal at a given moment. Usually, Charlie is close. Sometimes now, however, he’s dead on–even his eyes. I can’t quantify it, but it sure is awesome.

The final area we’ve been working on is the jaw/larynx area. I struggled with this area–first I had the position wrong, then I had trouble with Charlie waking up when I tried to do it. Plus, it was uncomfortable. I e-mailed the peeps at ABR and some other parents, did some fiddling and things got better. Then, I bribed myself: I buy current episodes of One Tree Hill on iTunes and I only let myself watch them when I’m doing Jaw/larynx.

I finally saw a change after putting in some hours. I think it’s from the jaw/larynx exercise, but I suppose it could also be the neck. Anyway, his tongue is changing. Since I took Charlie home from the hospital, he’s had a forked tongue. Sounds creepy, but it’s not that bad. Charlie’s doc keeps asking me if I want to snip it, but it doesn’t seem to be causing any problems, so we’re not snipping anything right now. Well, it looks different sometimes now. The center part is still tighter, but he seems to have more control over it and sometimes it doesn’t look forked at all. His speech therapist agrees, so I’m not crazy. Well, I may be crazy, but not about that.

Christmas photo.

Here’s a picture of us doing an activity with drawers–namely, how to open them, and what goodies may be inside.

As a final note, I’ll add that after two Feldenkrais sessions, Charlie lunged for something with his right hand. This is pretty unusual since he favors his left side for almost everything. If he does use his right hand it’s usually for support or help–not the lead hand. It could be a fluke, but I feel like I should write it down for posterity.

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Comments

  1. therextras says:

    I see a difference in his postures, too – objectively – not just ’cause you said so. (‘Though I’d be tempted ’cause Charlie has stolen my heart.)

    I wouldn’t call his tongue forked, but I can’t think of another descriptor-name for, erm, the midline being more apparent. (Too many words, I know.)

    Thank you for more Charlie today! Barbara

  2. tell that kid to stop being so dang cute!

  3. How funny….Elisabeth is the opposite with the hand thing. It’s all about the right….her left one seems to just be in her way :)

    Darling photos!

  4. Can that boy be any more adorable? So glad to hear he is improving!

  5. Sounds like you’ve had some great improvements!! Well done Mommy and Charlie!

    I have to agree – Charlie is just so cute!

  6. i think his tongue is cute. and have i said before how long his hair is getting? it’s making him look like such a big boy!

  7. Wow, he looks so much stronger in those first pics! Go Charlie!!!

  8. Nadine Hightower says:

    The pix with his tongue out…Nanny nanny boo boo MOM!!

    Go Charlie Go!!

  9. He’s adorable and you’re doing a great job.

  10. Mamá Terapeuta says:

    Oh my god! I’m so happy he is doing so much progress and so quickly!!!

  11. I’m just an outsider looking in. But it’s very obvious the changes in your little man. Other than getting cuter by the day. I’ve seen his posture, face, neck and eyes change before my eyes here on your blog. It is just another reminder that you are doing one hell of a job as a mom! Keep up the good work. You are truly special to continue to help your boy achieve goals!

  12. Miss Burb says:

    I’m really interested to see how this therapy works for you. My son is the opposite, he doesn’t use his left hand very much, but I feel like he has good potential there, but we’re just not addressing it.

    Charlie is so adorable! Can’t wait to hear more about is progression

  13. Keep up the great work, it’s obvious how much he is improving. I think the tongue is cute, it just adds to his overall cutenes!

  14. blairspage says:

    WOW… that is awesome progress Katy! He is such a cutie cutie! I’m going to have to stop showing Blair his pics so she doesn’t fall in love! :)

    Big Hugs to you!
    Tiff

  15. Your boy is so kick ass! Love y’all!

  16. Elizabeth says:

    Charlie looks like he’s getting to be a strong boy! :)

  17. Katy! He looks great! Keep up the great work – mom AND Charlie…

  18. White Hot Magik says:

    Wow, wow and Wow. What a cute kiddo. You are amazing, I really mean that!