One Down, Two To Go

Well, the neurology visit went very well. They’re always super-fast and this was no exception.

Basically, the neurologist was very impressed with all the things that Charlie is doing. She couldn’t believe he’s commando crawling or doing any of the other things he does like holding toys and pulling himself up in the stroller. She expressed her belief that some of his vision issues are cortical and I couldn’t disagree. If this is the case, then he still has more time for vision improvement. Personally, I’m reserving judgement for a later date. . . we’ll see what his vision becomes. She also really like the way he was bearing weight through his legs.

I told her hesitantly about ABR and she wasn’t worried about it in the least. She said that people who have big problems with alternative therapy usually don’t have kids of their own.

We discussed whether or not we want to have another EEG done to look for seizure activity. I decided against it. I think one EEG a year is enough, so we’ll another one done in six months. His last one was “improved,” and right now that’s enough for me.

She decided to switch Charlie over to the pill form of Phenobarb. We’re supposed to crush the pill and then mix it into his dinner. The good thing about the pill is that you only have to give it once a day. So now we’re down to one medicine, once a day. Unbelievable.

So, a good visit!

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Comments

  1. So glad you had a positive experience at the neuro. I dread going to our neuro appointments…I hate them in fact!!! I have to take Noah until he is walking… no walking yet so I’m afraid we will probably be going again in february!
    You and Charlie both have quite the fighting spirit…your a great team =) Glad all is well!

  2. Nadine Hightower says:

    Shakin’ her pom poms….Yeah Charlie!!!!

    He’s a dynamo!!!

  3. therextras says:

    Sounds good to me! Onward and upward! Barbara

  4. yay for a good visit and for a good reaction to the ABR. Go charlie!!!

  5. What great news!

  6. White Hot Magik says:

    I was so excited when I read your tweet about the crawling since I missed that he was doing that. I can understand about being hesitant to tell the doctors. I don’t like to challenge authority when it comes to the health of my child, but I always try to remmeber they aren’t absolute authority.

  7. terriblepalsy says:

    Charlie is doing so well. Congrats on a good report.

  8. I love what she said about alternative therapies. We’ve had to deal with some pretty severe mental illness issues with a few of my family members, and it’s CRAZY (ha! pun intended! oh, is that not funny?) what people say about certain medicines versus other types of treatments. I think, if it WORKS, then what’s the problem?

  9. Small Town Girl says:

    One medicine once a day??? That’s GREAT!!!

  10. Gina (Mannyed) says:

    WOW! That is really great news! GO TEAM CHARLIE!

  11. What a great report! Keep up the great work Charlie!