Well, the neurology visit went very well. They’re always super-fast and this was no exception.
Basically, the neurologist was very impressed with all the things that Charlie is doing. She couldn’t believe he’s commando crawling or doing any of the other things he does like holding toys and pulling himself up in the stroller. She expressed her belief that some of his vision issues are cortical and I couldn’t disagree. If this is the case, then he still has more time for vision improvement. Personally, I’m reserving judgement for a later date. . . we’ll see what his vision becomes. She also really like the way he was bearing weight through his legs.
I told her hesitantly about ABR and she wasn’t worried about it in the least. She said that people who have big problems with alternative therapy usually don’t have kids of their own.
We discussed whether or not we want to have another EEG done to look for seizure activity. I decided against it. I think one EEG a year is enough, so we’ll another one done in six months. His last one was “improved,” and right now that’s enough for me.
She decided to switch Charlie over to the pill form of Phenobarb. We’re supposed to crush the pill and then mix it into his dinner. The good thing about the pill is that you only have to give it once a day. So now we’re down to one medicine, once a day. Unbelievable.
So, a good visit!