One More Thing

So, we had one of our routine visits to the cardiologist today. If you’re new to the party I should explain that Charlie was born with a heart that beat WAY to fast. So fast, that it stopped working completely shortly after birth.

For this reason Charlie takes medication three times a day to keep his heart beating at a normal rate. We visit a pediatric arrhythmia specialist every four months.

Well, today the Charlie’s doctor dropped the words, “Wolff Parkinson White Syndrome” on me. Word to the wise: do not Google syndromes that they mention at the doctor’s office. I had a total freak-out this afternoon, but some further research has shown that this is a completely manageable situation. Actually, the doctor isn’t even sure Charlie has it–he just has some markers on his EEG that could mean WPW. So. . . Wednesday we head back to the hospital to check out the ole ticker and see if it mis-fires in a controlled situation.

Some days I’m a tired. Tired of doctors and tests and procedures and tired of stuff whomping me out of no where. I’ll be better tomorrow–just give me a second to vent here.

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Comments

  1. therextras says:

    Okay, don’t re-hyperventilate on me, Bird, but I sucked a big one when I read that diagnosis, no google needed. And perhaps a bit quicker than you and about the time it took to read your whole post, reminded myself there are very good treatments (in the curative range) for WPWS.

    That said – not very helpful for your energy level. I know you will get a wide range of support here and offline.

    An encouraging bit is that with a correct diagnosis, the worst outcome can be prevented.

  2. *crossing fingers extra hard for Charlie & the WPW*

    Hang in there sweetie. You deal with a tremendous amount of anxiety on a daily basis. Vent ALL YOU WANT.

  3. You can vent all you want!! I honestly don’t know how you deal with it all – you are a saint!!!!

  4. Oh Bird,
    Why is it always one more thing. Just when we think we have it under control, here is something else to deal with.

    I liked the link you provided, made me think that this is something manageable. Sure hope you guys don’t have to find out.

    Prayers for you and your sweet little one.

  5. Hey, chin up!! I can understand your worries, but look at everything you guys have overcome so far. This is just another little bump in the road.

    You can vent all you want, you are entitled too! πŸ˜‰ and have a couple drinks too!

    You guys are in our prayers here!

  6. don’t you hate anything followed with “syndrome”, I have been down the google path and it is an ugly place- stay away!
    Sorry you had a craptastic kind of day, have a drink, or three πŸ˜‰

  7. blairspage says:

    Girl… I will have to go look at that! Is this something that they normally don’t diagnose until they are older? I don’t think I have ever heard of that!

    I hope everything else is going well for you and little Charlie!

    Big Hugs – Tiffany

  8. Love the pictures! And you vent all you want, that’s one of the perks of having a blog, right?–I’m sure you’ll get a clearer picture as the days go by as to whether or not Charlie has any syndrome…like you said it would be a completely manageable situation.

  9. Small Town Girl says:

    I can’t imagine how sick you are of going to doctors, sitting in waiting rooms, etc. I’m so sick of it and I’ve only had one summer full of it. I feel for you, in a weird way. I know it’s not the same, but it is what it is.

  10. Nadine Hightower says:

    You need a weekend to relax. Plan a date out with the Hubs.
    Take a deep breath and relax.

  11. Vent all you want, its free! As always, I will be praying for Charlie and praying that you guys have the strength to tackle whatever comes your way.

    GO TEAM CHARLIE!

  12. Hi Katy,

    I’m the one who asked you a while ago about manapoll.
    My son was diagnosed with WPWS at 2.5 years old. His daycare provider noticed a vein pulsation on his neck and we had to take him to ER because his heart rate was at 250. He started taking propranolol 3 times per day and never had any episodes since. Our doctor said kids often outgrow it. Our son now almost 4.5 y.o., stopped taking the medication a few months ago and we only need to do an EKG every 6 month to follow up.
    I hope Charlie will outgrow it as well and till than the medication will keep it under control.

    Email me if you have any questions.
    Gala

  13. White Hot Magik says:

    I hope you are feeling better today, and hope the doc’s fear is unfounded.