Archives for October 2008

The Skinny

So we woke up bright and early and headed across the lake today for Charlie’s procedure. I went alone, which is typical. I decided a long time ago that I wasn’t going to waste my husband’s precious vacation sitting around in hospital rooms.

They admitted us almost as soon as we got there, and then we waited about five minutes longer than forever. Really, it was about three hours, but when you’re spending your time with an under-fed, cranky toddler, it’s a long time.

I had basically resigned myself to the worst of all possibilities–a potentially life-threatening syndrome that would require surgery ASAP.

I needn’t have bothered.

Doctor came and said that he shows no signs of tachycardia and no signs of Wolff Parkinson White Syndrome. We are going to discontinue his heart medicine immediately. How cool is that? We’ll check back in a month after he’s completely medicine free, but the doctor was extremely optimistic.

I have other interesting news as well.

ABR is not a quick-fix. The more hours you build, the more changes you see. You really have to have faith in the beginning that you’re heading somewhere.

I have seen some teeny, tiny changes, though. As soon as we started the chest compressions I noticed that Charlie started making more and longer noises. This is minor, but it IS a change. I can also see an almost imperceptible change in his rib cage. When we left for Montreal, it was really angular. The evaluator said that his collapse was “significant.” Well, he looks slightly less pointy. Slightly. I thought I was just imagining it, but I asked my husband if he noticed anything different and he said the exact same thing. Of course, I’ve also been working on his neck and that looks exactly the same.

Moving Right Along

So, we’re having the “procedure” tomorrow. I guess I should clarify that I knew this procedure was in our future–I just didn’t know that we might get another diagnosis. I hate diagnoses–they feel like baggage. Truthfully, though, this is a small thing compared to some of the other stuff we have been through.

In other news, the much-talked-about business is now officially in it’s infancy. I now have my very own Limited Liability Corporation. My brother says that I’m his first official client. I’m still so skittish about saying too much, but I will say that it involves selling my art and maybe using it in ways I didn’t think of originally. I am excited, but also nervous because mostly I stick my art in the garage where no one can see it. I’ve picked out some equipment and now I’m trying to squeeze in chances to paint more. Can’t sell what you don’t have. A lot of my stuff is for children, but I’m also doing some stuff that adults would like. There’s a bunch of other stuff in the works, but I hate to talk too much about it until things are closer to “up and running.” Truthfully, I’m shooting for an official “opening” sometime in March, but we’ll see how things go.

One More Thing

So, we had one of our routine visits to the cardiologist today. If you’re new to the party I should explain that Charlie was born with a heart that beat WAY to fast. So fast, that it stopped working completely shortly after birth.

For this reason Charlie takes medication three times a day to keep his heart beating at a normal rate. We visit a pediatric arrhythmia specialist every four months.

Well, today the Charlie’s doctor dropped the words, “Wolff Parkinson White Syndrome” on me. Word to the wise: do not Google syndromes that they mention at the doctor’s office. I had a total freak-out this afternoon, but some further research has shown that this is a completely manageable situation. Actually, the doctor isn’t even sure Charlie has it–he just has some markers on his EEG that could mean WPW. So. . . Wednesday we head back to the hospital to check out the ole ticker and see if it mis-fires in a controlled situation.

Some days I’m a tired. Tired of doctors and tests and procedures and tired of stuff whomping me out of no where. I’ll be better tomorrow–just give me a second to vent here.

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