Charlie Update

So last week Charlie had his one year evaluation with Early Steps. That’s the state-sponsored early intervention program. It kind of took me by surprise. I mean, I knew it was coming, but the evaluator just tagged along to one of his regular appointments, so it was in the back of my mind and then BOOM she was here with her little case and her checklists. To add to the stress, one of my out-of-town guest arrived right in the middle of the whole thing.

I haven’t gotten the results yet, but a novice could see that Charlie is behind. The evaluation just helps you make a new set of goals. They’ll say “he’s at eight months in gross-motor” and you can build from there.

I was pleased to see that he could do some things that the evaluator didn’t expect. Also, his vision has improved by leaps and bounds. She was thrilled to see him tracking a light source on both sides. His vision is still slow–if something moves too fast then he can’t track it–but he’s definitely using it.

When the evaluator last saw Charlie he was three months old and he could do almost nothing physically. Now, he picks up his head while on his stomach, rolls over, prop sits, rakes in objects with his hands, picks up toys, and reaches. This is wonderful for my mommy-heart because it means that he can play. He is able to play with toys, pick them up, manipulate them. Small potatoes in most homes, but we don’t take anything for granted in this house. He’s getting stronger and he’s also showing signs that he’s bored with the status quo. I’m going to have to start coming up with some new activities.

The evaluation also pointed out some areas where I could make some changes. Charlie shows absolutely no knowledge of names. The OT reported that with his level of intelligence and awareness he should know his name by now. Since he knows words like “up” and “sit” and “stand” then he probably should know his own name. I think the problem in that my family is the nickname family. The kid has a thousand nicknames and they’re constantly changing: Bean, Bambino, Bino, Chaz, Munchkin, Munchie, Peanut, Carlito. Is it any wonder he’s unsure? So, the big assignment for now is to work on using only “Charlie” as his moniker. Tough assignment, but I know we can do it!

I won’t get the official results til next week, but they aren’t critical. I know we’re behind and this will just help us create new goals. In general, I am happy to report that Charlie is growing and learning at his own pace. As far as I’m concerned, if he’s progressing than I’m happy.

I wanted to post pictures, but I haven’t had a chance to take any. I promise to work on that!

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Comments

  1. I allowed myself a grim chuckle. Magnus too is anything but Magnus. Are there any intervention programmes for adults?

    I’m proud of you guys. Charlie is doing so well.

  2. FreckledFireLily says:

    I am still reading your blog. Not daily but I keep up! Can’t wait to see more Charlie pics.

  3. Bah! I hate evaluations. I hate hearing that he’s more behind than I thought he was.

    I like your attitude, missy.

  4. That’s funny about all the nicknames – I agree, no wonder he doesnt know his real name :)

    You are doing a great job with him!

  5. We have nicknames in our house too. Did you know that if Kylie can’t get her father’s attention that she will yell out “Honey”. It cracks Eduardo and I up every time that she does that. I guess she must think that I get his attention better than she does and so calls him by what I call him.

    I always look forward to Charlie’s progress reports.

  6. Nadine Hightower says:

    Try to narrow the nicknames down to one….easier for all involved.

    We on TeamCharlie KNOW he will have a positive evaluation! We have great faith in that baby!!

  7. MeghatronsMom says:

    UGH! Hate evals- just had one yesterday our self.

    The nickname thing is hard. We have a few billion over here as well. I guess that when they start getting mobile & causing trouble is when they learn their real names- LOL.

    He really is coming along nicely.

    I left you an award on my bloggie blog, come get it!

  8. I think we are all guilty of the nickname thing..Noah’s changes monthly. Not sure when it crosses over from cute to very mom-ish and annoying to the general public!!

    Charlie is a remarkable, amazing, miracle, and I am sure is going to continue to surpass everyone’s expectations..

    Love the positive attitude!

  9. My kid goes by tens of names… He actually learned to respond to my dad’s nickname for him before he learned his own name (sigh).

    Glad to hear he’s doing so much now. Soon you’ll have a new and improved plan to help keep him moving forward.

  10. Your Charlie is one awesome little guy and he’s got an awesome mama! Pictures soon!!

  11. I love Charlie’s updates! I’d love to give that boy a hug. :)

  12. White Hot Magik says:

    I am glad he has made so many improvements. Although you know he isn’t at age level, I am sure you hate to hear it.

    While it pales in comparison, when we recently had an IEP meeting for my three year old and his speech delay I was mostly happy since he was going to get help. Also if his doctor hadn’t insisted, I wouldn’t have thought he was bad for his age.

    I am so glad that there are services available!

  13. You hate to give up the nickname thing but…
    Congratulations mommy and charlie for all the progress that he’s made so far.

  14. Rural Felicity says:

    So good to hear Charlie is progressing. :) Make up songs with the name Charlie in them. I can see you and him enjoying that!! It’s tough to not call them by their nicknames, so good luck with that! As far as assignments go, though, it’s not too horrible. :)

  15. Yeah – we have a ton of nicknames here too. We are also a nickname family.

    I’m glad to hear Charlie is making great progress on so many fronts. I have such mixed feelings about evaluations but like another poster said, you have a great attitude.

    Can’t wait to see some pictures!