One of those days. We all have them. Here’s mine:
Today, at lunch, my uncle removed the cooked zucchini from his plate and put it on his bread plate–because he doesn’t eat cooked vegetables. For reasons that are completely stupid, this annoyed the crap out of me. I informed him that it was bad manners. Never mind how egregious it is to comment on someone else’s manners.
No fewer than five people in the restaurant commented that Charlie was sleepy and by the end of lunch I was storming out of there. He did, in fact, sleep through all of lunch, but why in the name of Caesar can’t people just shut the hell up and not talk to me? I don’t come up to you and say that the diet doesn’t appear to be working. I don’t point out the bags under your eyes or the glaring roots. DO ME THE SAME COURTESY. One of these days I’m gonna snap and yell, “no, actually, he’s not sleepy–he has major brain damage and cerebral palsy and vision problems to boot–WANNA TALK ABOUT THAT?” Sense a little tension?
In the car on the way home I was singing Montgomery Gentry’s song Lucky Man full blast. I got to the verse, “had a close call last spring” and choked up. I had to stop singing.
And finally, I got an update on a baby that was in the hospital with Charlie. He had to have a Heart catheterization done (standard follow-up in his case), and his mom sent an update and pictures. In one of the pictures he’s sitting in a toy car and smiling at the camera. I just lost it. I started sobbing and couldn’t stop. This woman has had three children who can walk and who look at her and smile. It just didn’t seem fair.
I would say that 90% of the time I feel extremely blessed and lucky and happy. Then I have days like this. I guess you just gotta let the tears fall sometimes.













I’m so sorry you had such a nasty day. I hope you feel better tomorrow.
One day I had a handful of random strangers tell me that Crew, who was slumping down in his stroller, sure looked comfortable/sleepy and I nearly lost it more than once. In fact, I did say “Actually, he has CP and doesn’t have much trunk control” then kicked myself for not letting his comment roll. Some days are like that. *hugs*
First, I’d love to give you a hug. Then I’d take you out for a drink. I hope tomorrow is better.
Went out and had a margarita. That, plus some adult conversation, and I’m feeling a lot better.
So sorry to hear about your crappo day. I sort of dropped out of the blogging community. Between work and school I just don’t have a lot of time. I am glad Charlie is making improvements. When I read your posts I am always thinking about my husband’s cousin who had CP. He was sharp as a tack and although he lives at home with his Dad, he has a great job and social life. Even though I don’t come by much I keep you guys on my prayer list. Take care.
I’ve been reading your blog for a while and enjoy it a lot. Charlie is a such a handsome little guy and he’s made some great progress.
I had to comment on this post. I’m sorry you had a crappy day but just a couple days ago I had a bit of a simialar experience. We went to the mall for about an hour and had about 5 people make a comment about how sleepy my baby was. I was ready to snap! This has been going on for a while and sooner or later some poor, unsuspecting person is going to get an earful!
There are days I just want to cry so bad but I’m afraid if I do, I won’t be able to stop…and then what happens?