Charles in Charge

What She Wore: Gray running pants; red t-shirt that a former student gave me; tennis shoes.

What She Ate: Pot roast and potatoes made by the Hub; macaroni and cheese from a Southern Living Cook Book; green beans with tomatoes and andouille–that recipe is also the Hub’s. He should write a cookbook or something.


Well, I forgot to say anything, but we’ve started tapering off of Charlie’s medicine. Yippee! We’re still on house arrest, but the end is in sight. Truthfully, I’m not exactly sure what we’re going for, but hopefully his next EEG will look “better.” I don’t know what “better” will look like (not being a nuerologist and all), but feel free to say a prayer if you’re the type.

Charlie, on the other hand, is blissfully unaware that his nuero is concerned. He’s just doing his thing. He WANTS to crawl so badly. Put him on his stomach and he’s wiggling like he wants to commando crawl. He might even gain the tiniest amount of ground, but he’s not really strong enough. He’s also holding the table position briefly. Who knows how long it will be before he puts it all together, but it’s fun watching him try.

They’ve found him a physical therapist as well. He’ll probably start with her in March. Meanwhile, the OT has big plans for my little man. Here are some of the things she’d like to do:

She wants him to start in a stander once he begins PT.

She’s also ordered a thumb splint to help hold out one of his thumbs–he keeps it tucked under.

She would like to order him something called hipsters which will keep his knees together. Hopefully, this will help keep his hamstrings less tight.

She wants to order some shoe inserts for when he starts practicing standing and walking. I guess that means I’ll have to buy him some shoes too.

Finally, she wants to have a new swallow study done. She wants to see if he needs someone to help him work on eating solids, and she wants to know if he still needs to have his liquids thickened. I’m not getting my hopes up, but I feel like he’s gotten a lot better with that, so who knows. . .

As far as my own goals for Charlie, we’re still working on using his hands in play. Things are improving in this area as well. We’ve finally got him playing his little piano. He would still rather someone else do it for him, but even a little progress is progress.

We’re keeping my boy busy, but like they say, “He writes his own book.”

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Comments

  1. Look at that happy boy! What a smile. *grins*
    I always find it hopeful when someone steps up and makes a plan. Any plan… but a plan. I think it’s great that this OT is laying out major stuff for Charlie but your right: he’s the boy in charge!

  2. That’s great that the therapist wants to do so much with him and has a plan. Yay! He does look so happy!

    And I laughed at your dine and dash story – I don’t blame you, I hate when I just want to pay but can’t seem to get the waiter’s attention!

  3. He is a doll. Sounds like you like the OT. I am also glad you keep us updated with the challenges Charlie is facing. I didn’t do the shoe thing when my guys were little either until they really needed it. Do you see kids in designer baby shoes and just shudder at the cost? (Maybe not I forgot you were a shoe hound.)
    Oh and I thought of you last weekend as we went to the symphony I went and bought new pretty shoes to wear instead of my ugly clumpy ones. I think you once told me fashion hurt sometimes. The best news is that they are really comfortable high heels and cute!

  4. Nadine Hightower says:

    Yes he does!!! He makes great strides.

    I think that elephants are good luck!!

  5. Well, I think that all sounds like some good planning. Go, OT! I’m looking forward to watching him grow and learn.

  6. Hey girl… I LOVE the new pics of Charlie! Sounds like he is progressing great. That’s good that you guys are weining him off now. It will be nice to get him out of the house after you are done. I will be saying a prayer for him like I always do!

    Hugs to you!
    Tiffany

  7. Woostinkinghoo! Look at Charlie! I am so happy that he is doing so well! Keep up the good work! Go Charlie go!

  8. Live, Love and Laugh says:

    Charlie is adorable! I’m so happy he is doing well and you have found a great physical therapist! I was just looking at your pictures on your flicker and that Macaroni & Cheese looks so yummy? Is that a secret recipe? Have a fantastic day!

    Hugs!

  9. Charlie is the picture of contentment! All his pictures put a smile on my face.

  10. barnyardmama says:

    The mac ‘n’ cheese is from Southern Living–they do the best comfort food. Here’s the address for the recipe:

    http://find.myrecipes.com/recipes/recipefinder.dyn?action=displayRecipe&recipe_id=259028

    I’ll stick a link in this post too–up where it sayas “what she ate”

  11. I love the new pics of Charles in Charles…you know I’m singing the song in my head, don’t you!

    He looks so happy. And what great plans your therapist has for Charlie.