Going So Quick

What She Wore: blue plaid pajama pants; LSU t-shirt; socks. It’s almost midnight, OK?

How did it get to be almost Sunday already? I’ve been meaning to brag on my boy since Thursday night. Thursday Charlie’s OT came to see him. With the holidays, it’s been three weeks since she last saw him. She was SO impressed with all the strides he’s made. We’re not sitting independently, but it feels closer and closer. He was also laughing and giggling and making eye contact which is something he struggles with. She used the word AMAZING at least five times.

Of course, when things are going well, you start looking ahead to the next big goal. The next one is a toughie for me–eating solid food. I hate, hate, hate the whole business. It makes the diapers stink. When we’re done he’s got food all over his face, his chair, his bib–everywhere! And for what? The half-eating/half-dribbling thing seems pretty inefficient to me.

But, with kids like Charlie you can’t take anything for granted. Many children with CP struggle with the move to solid food. They gag and choke and spit it back out. Luckily, Charlie doesn’t seem to mind. Unfortunately, it is still a skill and skills have to be taught–we can’t assume he’ll just figure it out on his own. So. . . here’s my goal for this week: I will try to feed him baby food at least once every day. I’m already dreading it. Great attitude, right?
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  1. Feeding A is a problem, they have to use this thickening agent to make it so that he can tolerate food. He doesn’t have the chew and swallow thing. Everything for him, even at 18 is pureed, which makes things interesting. You might want to ask about using a thickening agent, I am not sure where it is found, but it really helps him,they even put it in his milk, so that he gets some dairy. Just a thought.

    One step at a time, and your boy IS AMAZING!

  2. momto3kidz says:

    Hopefully you have one of those bibs that has sleeves and wraps all around Charlie’s torso with a pocket at the bottom that catches the drips before they hit his pants! Have fun with the messiness of it all!

  3. Anonymous says:

    you know she is right….he is amazing…look at how far he has come….and we all know how far he can go…just relax and try your best…even if you can’t feed him one day…don’t be so hard on yourself…we all haev set backs…

    *~* :o) if you do not have a smile today… :o) I will give you one of mine… :o) *~*

  4. Wow, he just keeps doing new and exciting things! LOL about the mess he makes when attempting to eat!

  5. Small Town Girl says:

    He truly is your miracle baby. He’s doing great, and you’ll get over this next hurdle together, too.

  6. Good luck! And love the pic–he’s super happy, huh? And very cute!